Guest guest Posted August 18, 2002 Report Share Posted August 18, 2002 Joey, If it were me, I would give Doc a call (our owner of the list) Ian Shillington.... he more than likely has treated this.... His number is 505-772-5889 or his email isDr.IanShillington Suzi joeycmiller wrote: Hello,I am new to this group.I don't know anything about herbal remedies but have some questions. Has anyone had any success treating severe epilepsy? My soon to be 4 yr old has many seizures & seizure clusters everyday. She has had severe epilepsy since she was 9 or 10 months old with one seizure free year (B6 stopped them for a year). She has taken 9 different medications and none have helped her. She has mostly myoclonic and absence seizures but has also had other kinds like tonic and tonic clonic. She is currently on the ketogenic diet (2 months now). This past year she has regressed terribly. She can't talk or follow a single direction any longer. My heart breaks as I watch her slide downhill. There is no explaination for why she has seizures as all tests have been normal except the EEG.My sister recommended Dr. Christopher's B & B. I have tried it with her for only 2 days and she seems worse. Thank you,Joey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 Something like this is certainly beyond my experience. Anything i would recommend would have to be considered strictly experimental. But actually this is beyond the experience of most doctors -- it is very unusual, especially with not responding to the ketogenic diet. Even though it may not have anything to do with the problem, do have her sleeping quarters checked for electromagnetic fields. That's a long shot in this case. I understand that sometimes flax oil has worked in extreme cases. Definitely, whatever you do, make sure it is with a live consultation with a good naturopath in your area. I also would be willing to be contacted privately concerning possible environmental factors in this case -- i want to see what happens here, and how it all works out. On Sun, 18 Aug 2002 20:01:18 -0000 joeycmiller <joeycmiller wrote: > Hello, > > I am new to this group. > I don't know anything about herbal remedies but > have some questions. > Has anyone had any success treating severe > epilepsy? My soon to be 4 > yr old has many seizures & seizure clusters > everyday. She has had > severe epilepsy since she was 9 or 10 months > old with one seizure > free year (B6 stopped them for a year). She has > taken 9 different > medications and none have helped her. She has > mostly myoclonic and > absence seizures but has also had other kinds > like tonic and tonic > clonic. She is currently on the ketogenic diet > (2 months now). This > past year she has regressed terribly. She can't > talk or follow a > single direction any longer. My heart breaks as > I watch her slide > downhill. There is no explaination for why she > has seizures as all > tests have been normal except the EEG. > > My sister recommended Dr. Christopher's B & B. I > have tried it with her > for only 2 days and she seems worse. > > Thank you, > Joey > > > Quote Link to comment Share on other sites More sharing options...
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