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Gardner's Syndrome

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My 3 year old sweet little son has been diagnosed with the family

inherited Gardner's Syndrome (an extremely rare inherited disorder).

It affects the large and small intestine by getting full of polyps only

removal of the organ is the current option of healing. Then the polyps

find elsewhere to grow, even on the hard bone areas, in which my son

already has a spot on his skull, a skull tumor, they call it. Anyone

know about this and can help with more info than the internet can give

in this rare disease???

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