Fibromyalgia --- does any one have advice on alternative medications ?

[Guest guest]

I've recently been diagnosed with fibromyalgia, and i'm very dis-

satisfied with the medications the doctor has prescribed for me. At

this point in time, i'm supposed to be taking oxycodone (5 mg./3 times

a day), Flexeril (10 mg./ 3 times a day), Rozeram (a sleeping pill),

and Lidocaine patches. I'm very sensitive to medications, and i'm

having adverse reactions to the Oxycodone - bloating, constipation.

I've been experimenting with some things I purchased from the health

food store - powdered barley, Fibro-Response, Royal Jelly, and B

vitamins. I'm wondering if anyone else suffers from FMS and can

recommend some things that have worked for them ? I've changed my diet

a great deal. I'm eating lots of vegetables, whole grains, fish, and

very little red meat. Any suggestions would be greatly appreciated.

Thank you so very much !

[Guest guest]

I was diagnosed a little over a year ago. I have made a few friends since then

with fibro as well.

First, don't let your family doctor try to prescribe your meds. I have found

that they do not know what they are talking about. Find a rheumatologist.

Fibromyalgia is in the family of autoimmune disorders and rheumatologists

specialize in this. You should also have the blood tests for rheumatoid

arthritis and lupus since they are sometimes comorbid with fibro.

Second, come to terms with the idea that everyone with fibromyalgia

experiences it differently. There is a lot of research out there on the causes

but no one has an answer yet. Research suggests that it could be cause from all

of the following: genetic factors, overload of toxins in your body, a

dysfunction in the hypothalamus, an imbalance of lactose acid (don't know much

about this one, my Physical therapist mentioned it), and dietary issues. The

only thing that everyone seems to agree on is that a treatment regimine that

includes meds, exercise, supplements and sleep helps. However, the specific

combinations vary for everyone.

 

I would love to give you more information, but I am at work and my lunch will

be over soon. I would tell you to call me, but I just switched to internet

phone and I have some crazy temporary phone number until they switch me back to

my old one. Email me privately with your phone number, and I will pull my

information together and give you a call this weekend.

 

Amanda Howard

luvmypittbulls

 

cheryl_waldrop <cherylwaldrop wrote:

I've recently been diagnosed with fibromyalgia, and i'm very dis-

satisfied with the medications the doctor has prescribed for me. At

this point in time, i'm supposed to be taking oxycodone (5 mg./3 times

a day), Flexeril (10 mg./ 3 times a day), Rozeram (a sleeping pill),

and Lidocaine patches. I'm very sensitive to medications, and i'm

having adverse reactions to the Oxycodone - bloating, constipation.

I've been experimenting with some things I purchased from the health

food store - powdered barley, Fibro-Response, Royal Jelly, and B

vitamins. I'm wondering if anyone else suffers from FMS and can

recommend some things that have worked for them ? I've changed my diet

a great deal. I'm eating lots of vegetables, whole grains, fish, and

very little red meat. Any suggestions would be greatly appreciated.

Thank you so very much !

[Guest guest]

Hi I'm new here. I just looked up and found that fibromyalgia is

the same thing that my chiropractors have called " trigger points " .

I get rid of these within 10-30 minutes by eating nutritional yeast,

say 1-3 tablespoons, often less. I think it is the vitamin B1

deficiency that causes the condition. But if not, it is some one or

more of the B complex vitamins.

 

, Amanda Down

<luvmypittbulls wrote:

>

> I was diagnosed a little over a year ago. I have made a few

friends since then with fibro as well.

> First, don't let your family doctor try to prescribe your meds.

I have found that they do not know what they are talking about.

Find a rheumatologist. Fibromyalgia is in the family of autoimmune

disorders and rheumatologists specialize in this. You should also

have the blood tests for rheumatoid arthritis and lupus since they

are sometimes comorbid with fibro.

> Second, come to terms with the idea that everyone with

fibromyalgia experiences it differently. There is a lot of research

out there on the causes but no one has an answer yet. Research

suggests that it could be cause from all of the following: genetic

factors, overload of toxins in your body, a dysfunction in the

hypothalamus, an imbalance of lactose acid (don't know much about

this one, my Physical therapist mentioned it), and dietary issues.

The only thing that everyone seems to agree on is that a treatment

regimine that includes meds, exercise, supplements and sleep helps.

However, the specific combinations vary for everyone.

>

> I would love to give you more information, but I am at work and

my lunch will be over soon. I would tell you to call me, but I just

switched to internet phone and I have some crazy temporary phone

number until they switch me back to my old one. Email me privately

with your phone number, and I will pull my information together and

give you a call this weekend.

>

> Amanda Howard

> luvmypittbulls

>

> cheryl_waldrop <cherylwaldrop wrote:

> I've recently been diagnosed with fibromyalgia, and i'm very dis-

> satisfied with the medications the doctor has prescribed for me.

At

> this point in time, i'm supposed to be taking oxycodone (5 mg./3

times

> a day), Flexeril (10 mg./ 3 times a day), Rozeram (a sleeping

pill),

> and Lidocaine patches. I'm very sensitive to medications, and i'm

> having adverse reactions to the Oxycodone - bloating,

constipation.

> I've been experimenting with some things I purchased from the

health

> food store - powdered barley, Fibro-Response, Royal Jelly, and B

> vitamins. I'm wondering if anyone else suffers from FMS and can

> recommend some things that have worked for them ? I've changed my

diet

> a great deal. I'm eating lots of vegetables, whole grains, fish,

and

> very little red meat. Any suggestions would be greatly

appreciated.

> Thank you so very much !

>