Wife with stage 4 brain tumor going down hill looking for help!

[Guest guest]

Hi all, sorry I haven't posted lately. To start with my wife had a fall about

month ago pryor before this happen she had chemo/radation and went through over

30 treatments and lost alot of weight. I had her taking a bunch of herbs to help

her through it. She started having problems with her knees and numness in to of

her fingers and pain in her lower back which moved up into her upper back and

neck and now into her head.she went and seen the doctor that did the brain

sugury back in jan.he did cat scans and mirs of her back and check the shunt

that he put in because of a sist that was blocking fluid from draining didn't

see anything wrong and just gave her a prescription for the pain . Well, the

next day of taking it she started to get sick continue for days and I finely

conviced her to go the emergency and they put to bottles of iv in her did a cat

and we were told that the only thing was found was fluid which the sunt it

draining it.Well, after the first iv bottle she was feeling alot better and they

gave her a prescription for the nausea which worked for about a day and she is

now still getting sick about 15 to 20 mins. after eatting anything or when

getting up to go to the bath room, which she can't walk on her own I have to

help her. there's times (past couple days) shejust don't want to try and get up

a go to the bathroom or eat. what ever she eats or drinks it comes back up about

15 to 20 mins.(not all of it just some) Well, I bought the Sutherlandia OPC

capcules & Triple-strength Cell Forté MAX3 capsules for her about a moth ago and

she said she won't take it until she gets the ok from him. She just seen him

this thursday and said that it would be ok for her to take after her last vist

when she gave him the name and said not to take it till he does reseach on it.He

gave good remarks on it(OPC)and has also got lined up for her to see the MD in

Indianapolis that is doing clinal trials on a new drug that is working on brain

tumors which has past FDA a proval for some type cancer like colon or pancreas

cancer, which is that her doctor told her dad and he can't remember which it is.

Well, now she in this state of health she can't go to ind. till she is better.

Don't know what to do to get her up and about and keep food & liquids in her to

get her strength built back up he said that if she isn't any better by monday

when she see's him that he is going to have her admitted in to the hospital to

get her well so she can go to ind. to meet this md. from what my father law said

that he doesn't think that anything to do with the tumor thats causing the pain

in her back that is now in her back part of the head. he's also got her on

steroids which she was on why'll doing radation.Has for the pain in the stomach

and nausea I don't know what that could be. The emergency had no clue what was

wrong with her besides beening dehydrate. my conserned is her not getting up off

the couch and walking around her muscles are going go to nothing. she seems like

she is giving up but tells me that she's not. if anyone has any advice I

appreciate it. thanks, ken

[Guest guest]

Hi Ken,On top of what your wife is going through, dehydration severely and adversely affects the body. I am sure that she has no intention of giving up, she just feels very weak and possibly very discouraged. I know how difficult it is being a caregiver, not only with the physical demands that it entails, but also emotionally. During this time your wife, more than anything, needs love, support, and understanding. Try to do your best to encourage her in a constructive and positive manner.Please do keep us posted.My very best,oleander soup , "sounddynamics" <kenwoody2 wrote:>> Hi all, sorry I haven't posted lately. To start with my wife had a fall about month ago pryor before this happen she had chemo/radation and went through over 30 treatments and lost alot of weight. I had her taking a bunch of herbs to help her through it. She started having problems with her knees and numness in to of her fingers and pain in her lower back which moved up into her upper back and neck and now into her head.she went and seen the doctor that did the brain sugury back in jan.he did cat scans and mirs of her back and check the shunt that he put in because of a sist that was blocking fluid from draining didn't see anything wrong and just gave her a prescription for the pain . Well, the next day of taking it she started to get sick continue for days and I finely conviced her to go the emergency and they put to bottles of iv in her did a cat and we were told that the only thing was found was fluid which the sunt it draining it.Well, after the first iv bottle she was feeling alot better and they gave her a prescription for the nausea which worked for about a day and she is now still getting sick about 15 to 20 mins. after eatting anything or when getting up to go to the bath room, which she can't walk on her own I have to help her. there's times (past couple days) shejust don't want to try and get up a go to the bathroom or eat. what ever she eats or drinks it comes back up about 15 to 20 mins.(not all of it just some) Well, I bought the Sutherlandia OPC capcules & Triple-strength Cell Forté MAX3 capsules for her about a moth ago and she said she won't take it until she gets the ok from him. She just seen him this thursday and said that it would be ok for her to take after her last vist when she gave him the name and said not to take it till he does reseach on it.He gave good remarks on it(OPC)and has also got lined up for her to see the MD in Indianapolis that is doing clinal trials on a new drug that is working on brain tumors which has past FDA a proval for some type cancer like colon or pancreas cancer, which is that her doctor told her dad and he can't remember which it is. Well, now she in this state of health she can't go to ind. till she is better. Don't know what to do to get her up and about and keep food & liquids in her to get her strength built back up he said that if she isn't any better by monday when she see's him that he is going to have her admitted in to the hospital to get her well so she can go to ind. to meet this md. from what my father law said that he doesn't think that anything to do with the tumor thats causing the pain in her back that is now in her back part of the head. he's also got her on steroids which she was on why'll doing radation.Has for the pain in the stomach and nausea I don't know what that could be. The emergency had no clue what was wrong with her besides beening dehydrate. my conserned is her not getting up off the couch and walking around her muscles are going go to nothing. she seems like she is giving up but tells me that she's not. if anyone has any advice I appreciate it. thanks, ken>

[Guest guest]

Hi Ken,

 

makes a good point here about the encouragement and some how finding a way to lift your wife's spirit. Dehydration and increased intracranial pressure from tumor and then radiation treatment really keeps someone guessing which could be causing the problems you mentioned. I am not a doctor or trained in the medical field. Just want to say that...so keep that in mind. My only experience was in going through a brain tumor with our son who is in heaven now. But, I will never forget the nausua (misspelled) or vomiting and having to deal with the dizziness that was very much like being sea sick when he stood up at times. All the problems she has once she gets up doesn't make it seem like a great idea to get up. It may be a necessary thing for her to go to the hospital for them to get her back up to par so she can travel. You can move her legs for her. Maybe you could have someone from

physical therapy come if you are in the hospital and show you the moves while your there. It is just moving her limbs, in gentle motions like arms folding or moving and legs etc. (Things I didn't know til later) The steroids will help with the pressure in her head also sometimes unfortunate evil to deal with steroids to get the pressure down. In your message it sounded like the doctor did give good remarks about OPC. Right? So then maybe she will start taking some then. There is a patch for sea sickness a scapalomine (probably misspelled) patch that helped at times. There is also the sea bands that you can buy at places like CVS drugstore that work by accupressure on the wrist area that help with nasau. That helped Nick alot!!! We taught the nurses and doctors where we were at about those. They were amazed.

 

 

If you can have people come over to cheer her up that might help too. Anything you can think of that would lift her spirits. It is easy to become isolated in such a situation. Don't be afraid to ask people for help. Which was something I wish I would have done more of. Keep us posted about things. I'll send good thoughts and prayers your way. Hope some of this helps, it's not much but, maybe it will help. If she is having intracranial pressure that is a huge problem in your fight here and no matter what you do she will be throwing up. OH, one more thing, something else I didn't know about that may help if she is having problems with eating is asking them if they can help you with a feeding tube of somekind that could help. Like a tube that goes down the nose kind that maybe you could learn how to do on your own. I know that may seem harsh but, because then what to

feed the best to keep down is a problem too. And I don't have much knowledge about all of that either. But, it is a big problem with pressure and keeping nutrition down so the body can keep food in it. And hopefully she will start taking a little of the OPC soon.

 

Hope something helps.

Hugs, love and peace to both of you,

Carla

 

--- On Sun, 6/14/09, May <luellamay129 wrote:

[Guest guest]

Ken, being dehydrated can cause dizziness, vomiting, weakness, disorientation

and etc. Did they check her electrolytes at the hospital? She may need her

potassium level brought up, she should be checked out.

Blessings, Jill~

[Guest guest]

-To help with nutrition when a patient will not eat, I have heard that you can

give them good nutrition by rubbing a good olive oil into the skin. It is

absorbed and does them much good. Just use a quality oil that will have many

nutrients in it.-Deb

 

- In oleander soup , " May " <luellamay129 wrote:

>

> Hi Ken,

>

> On top of what your wife is going through, dehydration severely and

> adversely affects the body. I am sure that she has no intention of

> giving up, she just feels very weak and possibly very discouraged. I

> know how difficult it is being a caregiver, not only with the physical

> demands that it entails, but also emotionally. During this time your

> wife, more than anything, needs love, support, and understanding. Try

> to do your best to encourage her in a constructive and positive manner.

>

> Please do keep us posted.

>

> My very best,

>

> oleander soup , " sounddynamics@ " <kenwoody2@>

> wrote:

> >

> > Hi all, sorry I haven't posted lately. To start with my wife had a

> fall about month ago pryor before this happen she had chemo/radation and

> went through over 30 treatments and lost alot of weight. I had her

> taking a bunch of herbs to help her through it. She started having

> problems with her knees and numness in to of her fingers and pain in her

> lower back which moved up into her upper back and neck and now into her

> head.she went and seen the doctor that did the brain sugury back in

> jan.he did cat scans and mirs of her back and check the shunt that he

> put in because of a sist that was blocking fluid from draining didn't

> see anything wrong and just gave her a prescription for the pain . Well,

> the next day of taking it she started to get sick continue for days and

> I finely conviced her to go the emergency and they put to bottles of iv

> in her did a cat and we were told that the only thing was found was

> fluid which the sunt it draining it.Well, after the first iv bottle she

> was feeling alot better and they gave her a prescription for the nausea

> which worked for about a day and she is now still getting sick about 15

> to 20 mins. after eatting anything or when getting up to go to the bath

> room, which she can't walk on her own I have to help her. there's times

> (past couple days) shejust don't want to try and get up a go to the

> bathroom or eat. what ever she eats or drinks it comes back up about 15

> to 20 mins.(not all of it just some) Well, I bought the Sutherlandia OPC

> capcules & Triple-strength Cell Forté MAX3 capsules for her about a

> moth ago and she said she won't take it until she gets the ok from him.

> She just seen him this thursday and said that it would be ok for her to

> take after her last vist when she gave him the name and said not to take

> it till he does reseach on it.He gave good remarks on it(OPC)and has

> also got lined up for her to see the MD in Indianapolis that is doing

> clinal trials on a new drug that is working on brain tumors which has

> past FDA a proval for some type cancer like colon or pancreas cancer,

> which is that her doctor told her dad and he can't remember which it is.

> Well, now she in this state of health she can't go to ind. till she is

> better. Don't know what to do to get her up and about and keep food &

> liquids in her to get her strength built back up he said that if she

> isn't any better by monday when she see's him that he is going to have

> her admitted in to the hospital to get her well so she can go to ind. to

> meet this md. from what my father law said that he doesn't think that

> anything to do with the tumor thats causing the pain in her back that

> is now in her back part of the head. he's also got her on steroids which

> she was on why'll doing radation.Has for the pain in the stomach and

> nausea I don't know what that could be. The emergency had no clue what

> was wrong with her besides beening dehydrate. my conserned is her not

> getting up off the couch and walking around her muscles are going go to

> nothing. she seems like she is giving up but tells me that she's not. if

> anyone has any advice I appreciate it. thanks, ken

> >

>