dandy walker syndrome

[Guest guest]

I have a friend who has a daughter--a little one, who was born with Dandy walker. She has a shunt to drain water from her brain. The baby girl is still having seizures after three years of every drug known to man to stop seizures, with the exception of natural remedies.

She has been on Atkins (I know, eeeww, but they were trying to stop the brain activity in part of her brain).

 

Just last week the baby girl has begun on a heavy duty barbituate which will, likely as not, kill her.

Anyone got any ideas? The next step, when they see this drug doesn't work, is to evaluate her to possibly remove the part of the brain causing the seizures. This is not a viable solution if the child, as we suspect, has seizures in all parts of her brain.

 

Doc, would you dare to touch this? Anyone?

 

 

Flo

 

It matters not... Who you love, Where you love, Why you love, When you love, Or how you love, It matters only that you love.~ John Lennon

[Guest guest]

Are these epileptic episodes? If this is

so, my previous message re the DVD ‘First Do No Harm’ will be of

help to your friend. It gives details of a hospital based programme, which uses

diet not drugs

to treat epilepsy.

 

It is a true story of a mother’s

search to prevent powerful drugs being used on her 7 year old son. At the end

of the DVD there is information with a hospital help line for further

information. The named hospital is in the USA; the programme takes 2 years, however,

although this may improve

the little girl’s life; she will still need attention to her drains to

keep them clear. These drains MUST NOT be left unattended because it will cause

further pressure on her brain if they become blocked.

 

All that can be done is to have the

assessment by the hospital concerned; should the child be accepted onto the VERY

strict programme both child and parent will be closely monitored.

 

My prayers go with you in helping this

lady deal with a very difficult problem.

 

 

Regards

 

Marion

Ghosh

 

 

 

 

 

 

 

Flo [fgarig]

12 April 2005 02:18

To:

herbal_Remedies

Herbal Remedies - dandy

walker syndrome

 

 

 

I have a friend

who has a daughter--a little one, who was born with Dandy walker. She has a

shunt to drain water from her brain. The baby girl is still having seizures

after three years of every drug known to man to stop seizures, with the

exception of natural remedies.

 

 

She has been on

Atkins (I know, eeeww, but they were trying to stop the brain activity in part

of her brain).

 

 

 

 

 

Just last week

the baby girl has begun on a heavy duty barbituate which will, likely as not,

kill her.

 

 

Anyone got any

ideas? The next step, when they see this drug doesn't work, is to evaluate her

to possibly remove the part of the brain causing the seizures. This is

not a viable solution if the child, as we suspect, has seizures in all parts of

her brain.

 

 

 

 

 

Doc, would you

dare to touch this? Anyone?

 

 

 

 

 

 

 

 

Flo

 

 

 

 

 

It matters

not...

Who you love, Where you love,

Why you love, When you love,

Or how you love,

It matters only that you love.

~ John Lennon

 

 

 

Federal

Law requires that we warn you of the following:

1. Natural methods can sometimes backfire.

2. If you are pregnant, consult your physician

before using any natural remedy.

3. The Constitution guarantees you the right to be

your own physician and to

prescribe for your own health.

We are not medical doctors although MDs are

welcome to post here as long as

they behave themselves.

Any opinions put forth by the list members are

exactly that, and any person

following the advice of anyone posting here does

so at their own risk.

It is up to you to educate yourself. By accepting

advice or products from list members, you are agreeing to

be fully responsible for your own health, and hold

the List Owner and members free of any liability.

 

Dr. Ian Shillington

Doctor of Naturopathy

Dr.IanShillington

[Guest guest]

Marion, this movie is about the ketogenic diet (atkins like thing)...Hannah, the baby girl, was on the ketogenic diet and it didn't change anything for her.

Thank you for trying, though.

 

Flo

 

-

Marion Ghosh

 

 

Are these epileptic episodes? If this is so, my previous message re the DVD ‘First Do No Harm’ will be of help to your friend. It gives details of a hospital based programme, which uses diet not drugs to treat epilepsy.