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You can make a difference OT

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I post this with Chris, the list mom's permission. This is a letter written by

my son Greg. This is very important to him and you will understand why it is

important to me. Please give this request your consideration. Thank you. The

letter appears below:

MAKE A HAPPY MEMORY EVERY DAY:

Evelyn

Alternasense Skin Design Products

www.alternasense.com<http://www.alternasense.com/>

 

 

 

Many of you know my mother Evelyn. You also know that she makes no

bones about discussing my medical condition. For those of you who

are not aware of this, I live day to day surviving and fighting for

my life against the disease AIDS. I have been living with this since

November of 1997.

 

In order to survive I require medications that are very expensive and

unfortunately I do not have medical insurance. However there is a

program that is a national program which provides me with my

medications at no cost. This program is called ADAP or the AIDS Drug

Assistance Program. Without this program and its assistance I would

have died many years ago. This program is now in danger on a nation

wide scale.

 

The Federal Government has been cutting the funding each year for the

past several years which is creating a financial crisis for the

program. As of right now there are several states which are in

danger of making cuts in service to people living with this disease.

These cuts are coming in the form of reducing the kinds of drugs

available, implementing a cost sharing or CO-pay situation, imposing

a two year waiting list to get on the program and closing down

programs all together. If this continues to happen people all over

the country are going to die, including myself. I don't want to die!

 

In order to save these programs I went to Washington DC this past

week with a delegation of 100 people who either work in the HIV

field, are currently receiving services from the program or are on a

waiting list to get on the program in their states. We embarked on a

task to appeal to our Congressmen and Senators to push for a $180

million emergency supplemental increase in the national ADAP program

to help save and the lives of people in those states in danger of

losing or restricting their programs and services to people who are

desperately waiting of medications.

 

This is not an easy task. But I believe that $180 Million is not a

great deal of money if it saves the lives of people here at home. We

have spent billion of dollars to fight in other parts of the world

and now it is time to help our own people. I support our troops in

their efforts, but we need help here at home too.

 

Currently these states are in danger of having their programs closed

or restricted.

 

Alabama - Has capped enrollment, 247 people on a waiting list.

Alaska - Capped Enrollment, 4 on the waiting list.

Arkansas - Capped enrollment.

Colorado - Capped Enrollment and reducing medication allowed, 190

waiting on the list.

Idaho - Capped enrollment, Monthly expenditure cap, 3 on wait list

Indiana - Capped enrollment.

Kentucky - Capped Enrollment, 140 on wait list.

NOTE*** In the last 3 months 7 of those on the wait list in Kentucky

who needed meds and could not get them Died.

North Carolina - Capped Enrollment, 126 on wait list.

Oklahoma - Cutting drugs on the list, annual expenditure cap, 38

people have reached their cap and are no longer receiving medications

to survive. They will most likely die.

Oregon - Cutting drugs on the list, Lowered financial qualification

to get on the list to 200% of the federal poverty level, imposed cost

sharing.

South Dakota - Capped enrollment, 49 on wait list

Washington - Lowered Financial Qualifier to 200% of federal Poverty

Level, Cutting drugs on the list, Imposed cost sharing.

West Virginia - Capped enrollment, 28 on wait list.

Wyoming - cutting drug on the list, lowered financial qualifications.

 

People in these states are both scared and mad that their government

does not view their lives as important and worth saving. Please do

not let this continue.

 

What I NEED from you is that you contact your Congressmen and your

Senators and tell them that you are in support of this Emergency

Supplemental Request. I have a form letter that if you would like I

can email it to you and then you can send it to your representative.

We need to get our Government to take care of our own people. I have

fought to stay alive this long, I don't want the cause of my death

and the deaths of countless others to be because my own Country

didn't care enough.

 

Please help me and the countless others across the nation to live.

 

Sincerely,

Greg

 

 

 

 

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Evelyn~

I agree with K, is that a first?

Please send me the form also.

Give your son a big hug and we are proud to help from us!

Janet

 

>Evelyn

>

>Your son is very eleqouent, you must be so very proud of him.

>

>Have him (or yourself) send me the form.

>

>K

>

>Cheers!

>Kathleen Petrides

>The Woobey Queen

>Woobeys: The Loving Touch Therapeutic Pillow

><http://www.woobeyworld.com>http://www.woobeyworld.com

>

>

>

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Thank you Kathleen, I am very proud of him. He has grown into a wonderful man

and he cares so much about others even though he is ill himself he never stops

doing the work that needs to be done. I am sending you the form letter in an

attachment to you don't need to worry about opening it. Thank you for your

help. I believe that together we CAN make a difference.

MAKE A HAPPY MEMORY EVERY DAY:

Evelyn

Alternasense Skin Design Products

www.alternasense.com<http://www.alternasense.com/>

-

WoobeyQueen<WoobeyQueen

< >

Friday, February 27, 2004 11:42 PM

Re: You can make a difference OT

 

 

Evelyn

 

Your son is very eleqouent, you must be so very proud of him.

 

Have him (or yourself) send me the form.

 

K

 

Cheers!

Kathleen Petrides

The Woobey Queen

Woobeys: The Loving Touch Therapeutic Pillow

http://www.woobeyworld.com<http://www.woobeyworld.com/>

 

 

 

 

 

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Thank you all for caring about my son and others. This is indeed a great list.

I am sending the letter as an attachment. You can safely open it.

MAKE A HAPPY MEMORY EVERY DAY:

Evelyn

Alternasense Skin Design Products

www.alternasense.com<http://www.alternasense.com/>

-

Sandi Lundberg<injoy

< >

Friday, February 27, 2004 11:52 PM

Re: You can make a difference OT

 

 

Evelyn,

I agree with K that you must be a proud Mom.

I also would like to have the form sent to me.

Thanks for sharing this with our great list.

Sandi

 

 

 

 

 

 

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I sit here with tears in my eyes and thank you so much for your generous hearts

and kindness. I am sending the form as an attachment. You can safely open it.

Blessings to you all.

MAKE A HAPPY MEMORY EVERY DAY:

Evelyn

Alternasense Skin Design Products

www.alternasense.com<http://www.alternasense.com/>

-

Janet Golden-Hogan<janetkgolden

< >

Saturday, February 28, 2004 12:30 AM

Re: You can make a difference OT

 

 

Evelyn~

I agree with K, is that a first?

Please send me the form also.

Give your son a big hug and we are proud to help from us!

Janet

 

 

 

 

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