New Member/My Intro

[Guest guest]

Hello Michele,How does the baby take breast milk or rice milk.  I ask that

because the breast milk should be the easiest type of food for the baby to

digest.  If for any reason your baby cannot be breast-fed, then rice milk is the

next less intrusive type of food for young babies.  I have had a sick baby and

breast milk was the only thing he was able to digest.  I hope this helps. 

Nadiyah

--- On Tue, 7/14/09, corngonebad <corngonebad

wrote:

 

corngonebad <corngonebad

<< >> New Member/My Intro

 

Tuesday, July 14, 2009, 4:49 PM

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Hello,

 

I will apologize in advance as this might get long.

 

I have a 3 year old who had a stroke at 9 days of age with no known etiology.

She has problems from the stroke 1st being cerebral palsy, she is legally blind,

seizure disorder, fed via gtube, microcephaly, severely & globally

developmentally delayed. She is about a 5 month old. Non-verbal, non-ambulatory.

Her only real means of communication is to cry to let us know something is

wrong. She has reflux and had a nissen fundoplication but that has come undone.

I would like to solve the problem without any more surgeries. She has gastritis

too so basically this kid is in pain all the time and cries all the time. The

G.I. Doc says we are allready treating this the only way that we can. She had

endoscopy and biopsies done a week ago and all is normal except

redness/inflamation in the stomach. I took her off canned formula 5.5 wks ago

and started her on a blended diet of real food, fruits, veggies, protein etc. I

truly believe this HAS to be better for her than

 

a can of formula. Since this new diet, the vomiting is non existent but the

irritability is still. I need help. I need alternatives to try. She needs

relief. it's terrible to see and hear her hurting and there is nothing I can do.

 

SUGGESTIONS?

 

Thanks,

 

Michele