Guest guest Posted July 23, 2004 Report Share Posted July 23, 2004 The spirit of this comment is meant to help you and others on the list, so please read it carefully. When I read your question, my first response was, " Oh, I have some useful information on how to treat this disease. " as I have seen if quite a few times. But then I realized that I don't really treat Ciliac disease, I treat patterns. I am a Chinese medical practitioner. So I wondered, why is this person seeking information about treating Ciliac disease and then giving us information that is most relevant to a Chinese medical practitioner. So I thought that this would be a good time to ask you some questions. What patterns do you see? Are you treating those patterns? Are you having difficulty with this patient when you base your treatment on the patterns that you recognize? If you have marked this patient's file with patterns and you can answer yes to both the other questions, then, perhaps, you could ask for help in a way that would allow others to help you and your patient better. Very sincerely, > Ciliac Disease > > Would anyone care to share their experience with treating Ciliac > Disease. The case I have just taken on involves a young man of 17 > yrs. He was just diagnosed through his MD last week. And has since > started on a Gluten free diet. He has the sypmtoms of pale diarrhea > that is of a sticky quality and abdominal pain that is most prominent > in the morning. He will often rub his stomach and press it and he > enjoys the heat lamp over it. He suffers anxiety and has lost his > father a couple yrs back. His tongue is thin, pale, with a denuded > coating on the tip that is swollen into a mild spoon shape. I > observed his pulse: > > Rt hand: 1st- weak, 2nd- deep and slippery, 3rd- only slighty tight > Lt hand: 1st- thin, wiry, 2nd- wiry, 3rd- slightly tight > > Would love to hear/discuss any experience anyone has had with this > sort of case. Herbal protocols, acupuncture theory, and dietary > measures would be of interest. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2004 Report Share Posted July 25, 2004 Gregg, Once on the gluten free diet celiacs will often do much better within a couple of weeks to a month, but full recovery often will take a year or more. At the recent NIH consensus conference on Celiac Disease they stated that celiacs are often still deficient in B12, B6, folic acid and iron a year post diagnosis. You have to be careful in supplementing men with iron. They should be monitored with a serum ferritin test. Anxiety is a big component and gluten elimination is key in its management for many people. Supplementing the above nutrients can go a long way to eliminating the anxiety. They found the depression and anxiety can get worse after diagnosis, but I think this is because these nutrients don't get supplemented properly. Injections are often the best delivery method, although iron stains the skin so you will likely not want to do inject this one. The Celiac Sprue Association has some nice binders with listings of foods that are gluten free; as I am sure you well know you can't always read the label and tell if gluten is in there. Distilled alcohols and vinegars from grains are supposed to be OK but I still have people that react to them. Obviously herbs like shen que, and mai ya are off limits, and you have to be careful about prepared herbs that are processed in the same line as products that have wheat, rye, barley, oats, spelt. So this puts almost all the prepared herbs into question. The standard for gluten contamination is 20 parts per million. Sean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 Thanks a bunch! That was very helpful indeed. Sean Doherty <sean wrote:Gregg, Once on the gluten free diet celiacs will often do much better within a couple of weeks to a month, but full recovery often will take a year or more. At the recent NIH consensus conference on Celiac Disease they stated that celiacs are often still deficient in B12, B6, folic acid and iron a year post diagnosis. You have to be careful in supplementing men with iron. They should be monitored with a serum ferritin test. Anxiety is a big component and gluten elimination is key in its management for many people. Supplementing the above nutrients can go a long way to eliminating the anxiety. They found the depression and anxiety can get worse after diagnosis, but I think this is because these nutrients don't get supplemented properly. Injections are often the best delivery method, although iron stains the skin so you will likely not want to do inject this one. The Celiac Sprue Association has some nice binders with listings of foods that are gluten free; as I am sure you well know you can't always read the label and tell if gluten is in there. Distilled alcohols and vinegars from grains are supposed to be OK but I still have people that react to them. Obviously herbs like shen que, and mai ya are off limits, and you have to be careful about prepared herbs that are processed in the same line as products that have wheat, rye, barley, oats, spelt. So this puts almost all the prepared herbs into question. The standard for gluten contamination is 20 parts per million. Sean Quote Link to comment Share on other sites More sharing options...
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