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49 year old woman, CFIDS

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This is the latest from this person I've been treating. Apparently a

Dr. Cheney is a proclaimed 'expert' on CFIDS. She emailed this to me and

now wants to chase after this bit:

 

> CFS & DIASTOLIC CARDIOMYOPATHY

> Paul Cheney, M.D., Ph.D.

> Dr. Paul Cheney will speak on Saturday, June 18th from 2 to 5 pm in

> Irving, TX. (Between Dallas and Fort Worth.)

>

> The seminar will focus on the most significant research breakthrough

> yet in the area of CFS: this illness that keeps so many of us confined

> to beds or sofas for a significant part of each day may actually be

> saving our lives. CFS is a compensatory defense mechanism against a

> particular kind of heart problem that is extremely difficult to detect

> without proper equipment, trained technicians, and a highly

> knowledgeable doctor to interpret the data. "

 

I agree with what Yehuda said about securing her trust and curtailing

her doctor- amd remedy-shopping and confusion. Though I have been

insistent, she persists, and is often impressed with M.D. and Ph.D after

names. Cheney may have something important to say, but that is not the

point.

 

Frances Gander

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Googling Dr. Cheney MD reveals a lot of hits...

His protocol seems to be a lot of supplements and then this...

 

How can the brain be protected against excitatory neurotoxicity? Klonopin. This

long

acting benzodiazepine has been Cheney's most effective drug for CFIDS over the

years. He

believes that Klonopin and the supplement magnesium may be two of the most

important

treatments for CFIDS patients because of their neuroprotective qualities. He

recommends

2 or more 0.5 mg tablets of Klonopin at night. Paradoxically, very small doses

(usually a

quarter to a half a tablet) in the morning and mid-afternoon improve cognitive

function

and energy. If the daytime dose is low enough, you'll experience greater clarity

and think

better. If the daytime dose is too high, you'll become drowsy. Adjust your dose

for

maximum benefit, taking as much as possible without drowsiness. Adjust the

morning

dose first, then take the same amount midafternoon if needed, then take three to

four

times the morning dose at bedtime. Cheney recommends doubling the dose during

severe

relapses.

 

Dr. Cheney most frequently prescribes the combination of Klonopin and Doxepin,

along

with the supplement " Magnesium Glycinate Forte " . (Made by Douglas Labs, it

includes

taurine, and is available from needs.com.) Magnesium Glycinate alone is a good

choice for

the more budget minded. (It's available from http://needs.com as " Magnesium

Complex "

made by Klaire. Immunesupport.com sells it as " Magnesium Plus " .) A common dosage

of

magnesium is 200 mgs at bedtime. Too much magnesium can cause diarrhea, though

glycinate is usually the best tolerated form.

 

Cheney prescribes Doxepin in the form of a commercial elixir (10mg/ml). At low

doses

this tricyclic anti-depressant acts as a very potent antihistamine and immune

modulator.

Doxepin acts synergistically with Klonopin to assist sleep, and may improve

pain. Patients

tend to be very sensitive to Doxepin, which can cause morning fog and fatigue if

the dose

is too high (5 to 10 mg or higher). He recommends starting at two drops a night

and

gradually increasing the dose until " morning fog " becomes a problem. Most

patients can't

tolerate more than half a cc.

 

 

___________

 

I guess it's too late for me to go to Med. School and become an expert like

him....

 

doug

 

 

 

 

, frances gander <threetreasures@f...>

wrote:

> This is the latest from this person I've been treating. Apparently a

> Dr. Cheney is a proclaimed 'expert' on CFIDS. She emailed this to me and

> now wants to chase after this bit:

>

> > CFS & DIASTOLIC CARDIOMYOPATHY

> > Paul Cheney, M.D., Ph.D.

> > Dr. Paul Cheney will speak on Saturday, June 18th from 2 to 5 pm in

> > Irving, TX. (Between Dallas and Fort Worth.)

> >

> > The seminar will focus on the most significant research breakthrough

> > yet in the area of CFS: this illness that keeps so many of us confined

> > to beds or sofas for a significant part of each day may actually be

> > saving our lives. CFS is a compensatory defense mechanism against a

> > particular kind of heart problem that is extremely difficult to detect

> > without proper equipment, trained technicians, and a highly

> > knowledgeable doctor to interpret the data. "

>

> I agree with what Yehuda said about securing her trust and curtailing

> her doctor- amd remedy-shopping and confusion. Though I have been

> insistent, she persists, and is often impressed with M.D. and Ph.D after

> names. Cheney may have something important to say, but that is not the

> point.

>

> Frances Gander

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Klonopin. This long

acting benzodiazepine has been Cheney's most effective drug for CFIDS over the

years.

>>>>Boy to say Klonopin is brain protecting is quite a stretch.Doxepin is a good

drug in low doses for its sleep promoting and anti-histamine effects, but were

the does he get the so called immune modulating info? any ref?

 

 

 

 

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Klonopin is one of the scarier drugs out there, highly addictive. I

had to send a young patient to a detox unit once because his withdrawal

symptoms were so horrible. Stevie Nicks said that getting off Klonopin

was worse then getting off cocaine.

 

 

On Mar 13, 2005, at 11:50 PM, wrote:

 

> Googling Dr. Cheney MD reveals a lot of hits...

> His protocol seems to be a lot of supplements and then this...

>

> How can the brain be protected against excitatory neurotoxicity?

> Klonopin. This long

> acting benzodiazepine has been Cheney's most effective drug for CFIDS

> over the years. He

> believes that Klonopin and the supplement magnesium may be two of the

> most important

> treatments for CFIDS patients because of their neuroprotective

> qualities.

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