Morgellon's

[Guest guest]

>>>Have any of you ever dealt with *Morgellons Disease*? Ideas in how to treat

someone who has been diagnosed with it?>>

 

Hi Sandi,

First, I want to know where you found a Dr that would even

acknowledge it's existence, much less diagnose someone with it! Our

medical community has me scratching my head most of the time. I have

a little almost 90 YO woman that suffers from this. She has tried

everything that the dermatologist recommended and has tried to follow

what her reg. Dr says too.....tho he has only prescribed Xanax,

doxepin and Haldol! I totally understand the Doxepin....hubby is on

100mg for his Epstein Barr induced hives and it does help with the

itching, poor Myrtle was only on 10mg and couldn't get out of bed

I printed out some of the info that is either on the

www.morgellons.org site or it is linked from there. OK State Univ is

studying it.....and that is in Tulsa, only about 30 minutes

away. When I handed the Dermatologist the info about it, he barely

glanced at it and told me he though those folks were crazy. I

suppose since he doesn't know much about it, it makes it easier for

him to roll his eyes and call folks names eh? At any rate, the only

thing we have found to help her is Emu with Bulgarian Lavender, Lemon

Tea Tree and Butch's Oregano. It sure seemed like once I added the

Oregano, it really helped keep the outbreaks from even

occurring. I've been keeping pics of her progress and compared to

what it looked like when she was using all of the steroid cremes etc,

it's amazing! I've contacted the OSU folks as well and gave them the

scoop too. On her last Derm appt, we told the nurse what she had

been using and what she hadn't (his chemical laden cremes), so this

info was relayed to the Dr before he even came into the room. He was

shocked to say the least that what we were using was working. He

said that it wasn't important what we had used, just keep doing what

we were doing. Can you spell EGO?? LOL She has another appt today,

will be interested in hearing what he had to say. He told her the

scars wouldn't go away for at least 6 months. I told Myrtle that I

disagreed with him and that if she would use the Emu mix several

times a day, I could see the scars getting better in half the

time. Good Luck, this is a tough one indeed!