Guest guest Posted May 16, 2009 Report Share Posted May 16, 2009 I have a client with diffuse systemic and cutaneous mastocytosis. This is an orphan disease where excessive production of mast cells attacks the skin and internal organs. As a result she also suffers from long term cirrhosis of the liver, pyelonephritis, gallstones, asthma, a rod in her back, prolonged urgent diarrhea that doesn't seem to correlate with her food intake, and dehydration. 38 year old woman, diagnosed at 3, over a hundred hospitalizations, many for skin ulceration debridement but also for dehydration and electrolyte imbalance. Independent and working, as a special education consultant, well beyond her expected lifetime. Skin better since giving up gluten. Lower right abdominal quadrant pain of unknown etiology requiring periodic morphine- tests could not identify reason. Scant urination and low hydration of tissues. Stools will alternate between formed and urgent diarrhea (no undigested food), even within an hour (MD told her this is impossible!) Diarrhea is interfering with her ability to work. Always feels cold and below 60 degrees her fingers will turn white and tingle. Very yin deficient with red dehydrated tongue, no coat, many cracks including very deep and wide medial sulcus, pale lips with a little sublingual distention but not much. Her pulse is somewhat rapid, in moderate sized blood vessels, but the skin was so close to the bone that I could only identify one depth. Plumpit qi. Cannot take in water rapidly without it triggering her throat to spit up. Skin dry, weighs only 90 pounds at 5'3 " and skin is so sunken that her veins stand out. Diet is perhaps a bit high in gluten-free carbs and slightly low in fruits and vegetables, almost all organic. Any ideas for the diarrhea or how to divert water from the colon to the kidneys? Any ideas on formulas? Karen S. Vaughan, L.Ac., MSTOM Registered Herbalist (AHG) Creationsgarden1 253 Garfield Place Brooklyn, NY 11215 (718) 622-6755 See my Acupuncture and Herbalism website at:_http://www.byregion.net/profiles/ksvaughan2.html_ (http://ksvaughan2.byregion.net/) Twitter: Herblady22 Facebook: Karen Vaughan and Facebook group: Swine Flu and Herbalism Stop Mountaintop Removal Mining: _www.Ilovemountains.org_ (http://www.democracyinaction.org/dia/organizations/appvoices/campaign.jsp?campa\ ign_KEY=14105 & t=iLoveMountainsMAIN.dwt) **************An Excellent Credit Score is 750. See Yours in Just 2 Easy Steps! (http://pr.atwola.com/promoclk/100126575x1222377005x1201454319/aol?redir=http://\ www.freecreditreport.com/pm/default.asp x?sc=668072 & hmpgID=62 & bcd=MayExcfooter51609NO62) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2009 Report Share Posted May 30, 2009 I have worked with Mastocytosis. Person needs to be very strict about avoiding all gluten grains (wheat, oats ,barley, rye, and spelt), and likely all milk products. Also likely needs to avoid all milk products. Avoid any Chinese herbs containing gluten (common in spleen dampness formulas I believe). Best thing I have found to stabilize Mast Cells is Cromolyn Sodium. It only available by prescription in the bulk form, and the only pharmacy I know that has this is Clark's Pharmacy in Seattle, WA 800-480-3432. Until the Mast Cells are stabilized they will be spewing out histamine and there is little that can counteract that. Then I always check to see if there are bugs or other factors in GI tract with expanded GI Panel through Diagnos-Techs (I know other labs do stool tests, but have not seen any compare with this test from this lab). Note: one of the quick checks for proliferation of mast cells under the skin is dermagraphia, where the person can literally write their name on their skin with their nail (red raised histamine reaction) - same can be going on in the GI tract. Henry Jacobs, DC --- On Sat, 5/16/09, creationsgarden1 <creationsgarden1 wrote: creationsgarden1 <creationsgarden1 Mastocytosis To: Saturday, May 16, 2009, 9:14 PM I have a client with diffuse systemic and cutaneous mastocytosis. This is an orphan disease where excessive production of mast cells attacks the skin and internal organs. As a result she also suffers from long term cirrhosis of the liver, pyelonephritis, gallstones, asthma, a rod in her back, prolonged urgent diarrhea that doesn't seem to correlate with her food intake, and dehydration. 38 year old woman, diagnosed at 3, over a hundred hospitalizations, many for skin ulceration debridement but also for dehydration and electrolyte imbalance. Independent and working, as a special education consultant, well beyond her expected lifetime. Skin better since giving up gluten. Lower right abdominal quadrant pain of unknown etiology requiring periodic morphine- tests could not identify reason. Scant urination and low hydration of tissues. Stools will alternate between formed and urgent diarrhea (no undigested food), even within an hour (MD told her this is impossible!) Diarrhea is interfering with her ability to work. Always feels cold and below 60 degrees her fingers will turn white and tingle. Very yin deficient with red dehydrated tongue, no coat, many cracks including very deep and wide medial sulcus, pale lips with a little sublingual distention but not much. Her pulse is somewhat rapid, in moderate sized blood vessels, but the skin was so close to the bone that I could only identify one depth. Plumpit qi. Cannot take in water rapidly without it triggering her throat to spit up. Skin dry, weighs only 90 pounds at 5'3 " and skin is so sunken that her veins stand out. Diet is perhaps a bit high in gluten-free carbs and slightly low in fruits and vegetables, almost all organic. Any ideas for the diarrhea or how to divert water from the colon to the kidneys? Any ideas on formulas? Karen S. Vaughan, L.Ac., MSTOM Registered Herbalist (AHG) Creationsgarden1@ aol.com 253 Garfield Place Brooklyn, NY 11215 (718) 622-6755 See my Acupuncture and Herbalism website at:_http://www.byregion .net/profiles/ ksvaughan2. html_ (http://ksvaughan2. byregion. net/) Twitter: Herblady22 Facebook: Karen Vaughan and Facebook group: Swine Flu and Herbalism Stop Mountaintop Removal Mining: _www.Ilovemountains .org_ (http://www.democrac yinaction. org/dia/organiza tions/appvoices/ campaign. jsp?campaign_ KEY=14105 & t=iLoveMountainsMAI N.dwt) ************ **An Excellent Credit Score is 750. See Yours in Just 2 Easy Steps! (http://pr.atwola. com/promoclk/ 100126575x122237 7005x1201454319/ aol?redir= http://www. freecreditreport .com/pm/default. asp x?sc=668072 & hmpgID=62 & bcd=MayExcfooter 51609NO62) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2009 Report Share Posted May 31, 2009 Does that include GI fx effects from Metatmetrix Ross - hjjhjj Saturday, May 30, 2009 9:07 PM Re: Mastocytosis I have worked with Mastocytosis. Person needs to be very strict about avoiding all gluten grains (wheat, oats ,barley, rye, and spelt), and likely all milk products. Also likely needs to avoid all milk products. Avoid any Chinese herbs containing gluten (common in spleen dampness formulas I believe). Best thing I have found to stabilize Mast Cells is Cromolyn Sodium. It only available by prescription in the bulk form, and the only pharmacy I know that has this is Clark's Pharmacy in Seattle, WA 800-480-3432. Until the Mast Cells are stabilized they will be spewing out histamine and there is little that can counteract that. Then I always check to see if there are bugs or other factors in GI tract with expanded GI Panel through Diagnos-Techs (I know other labs do stool tests, but have not seen any compare with this test from this lab). Note: one of the quick checks for proliferation of mast cells under the skin is dermagraphia, where the person can literally write their name on their skin with their nail (red raised histamine reaction) - same can be going on in the GI tract. Henry Jacobs, DC --- On Sat, 5/16/09, creationsgarden1 <creationsgarden1 wrote: creationsgarden1 <creationsgarden1 Mastocytosis To: Saturday, May 16, 2009, 9:14 PM I have a client with diffuse systemic and cutaneous mastocytosis. This is an orphan disease where excessive production of mast cells attacks the skin and internal organs. As a result she also suffers from long term cirrhosis of the liver, pyelonephritis, gallstones, asthma, a rod in her back, prolonged urgent diarrhea that doesn't seem to correlate with her food intake, and dehydration. 38 year old woman, diagnosed at 3, over a hundred hospitalizations, many for skin ulceration debridement but also for dehydration and electrolyte imbalance. Independent and working, as a special education consultant, well beyond her expected lifetime. Skin better since giving up gluten. Lower right abdominal quadrant pain of unknown etiology requiring periodic morphine- tests could not identify reason. Scant urination and low hydration of tissues. Stools will alternate between formed and urgent diarrhea (no undigested food), even within an hour (MD told her this is impossible!) Diarrhea is interfering with her ability to work. Always feels cold and below 60 degrees her fingers will turn white and tingle. Very yin deficient with red dehydrated tongue, no coat, many cracks including very deep and wide medial sulcus, pale lips with a little sublingual distention but not much. Her pulse is somewhat rapid, in moderate sized blood vessels, but the skin was so close to the bone that I could only identify one depth. Plumpit qi. Cannot take in water rapidly without it triggering her throat to spit up. Skin dry, weighs only 90 pounds at 5'3 " and skin is so sunken that her veins stand out. Diet is perhaps a bit high in gluten-free carbs and slightly low in fruits and vegetables, almost all organic. Any ideas for the diarrhea or how to divert water from the colon to the kidneys? Any ideas on formulas? Karen S. Vaughan, L.Ac., MSTOM Registered Herbalist (AHG) Creationsgarden1@ aol.com 253 Garfield Place Brooklyn, NY 11215 (718) 622-6755 Quote Link to comment Share on other sites More sharing options...
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