Guest guest Posted November 11, 2006 Report Share Posted November 11, 2006 I joined this group quite some time ago and have been lurking since. I do not follow a gluten-free diet, though vegan (so the recipes are definitely applicable). I have found, in keeping my protein as high as I like, and my calories low, that I use seitan on a regular basis (it has a very high protein to calorie ratio). However, I suspect I may have, or have caused (is this possible?), a gluten intolerance or celiac disease (the difference is unclear to me yet). So, some questions: 1) What symptoms did you all have that had you realize your " predicament? " (I only occcasionally get intense gastro- intestinal cramping. What is more common for me is a fuzzy-headed dizziness with weird sensations in my face and fingers.) 2) What tests did you use to confirm your suspicions? 3) Which non-gluten protein sources rival the 21 grams of protein per 100 calories of wheat gluten (seitan)? Thanks! -Erin www.zenpawn.com/vegblog Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2006 Report Share Posted November 12, 2006 Erin, Hi, my name is Danielle H. I understand what you are going through. I am allergic to 3/4 of the food in the free world, I think. I had a LOT of itching and hives in the abdominal area. Process of elimination is how I figured it out. I knew I was also allergic to (besides a host of other foods) wheat, tomatoes & potatoes. (Tomaotes and potatoes are gluten free, I just can't eat them) With the help of this group, I eventually learned about all of the foods connected with those. At first I figured out the nightshade family (smaller group than the gluten family). That got rid of a tiny bit of the itching, but not all and none of the hives. When I finally figured out the gluten stuff that I was using at home and got rid of it, the hives and itching disappeared completely. That probably took me about 6 months to a year or more. As a bonus, when I eliminated all of these things, my arthritis and sinus cleared up too. Not totally, but I can do a lot of things I was unable to do before. Interesting. Also, when I eliminated all gluten, the weight disappeared, too. No more upset stomach or colon. No gas or cramping. No " dumpy " feeling. Head is clear- Well that is debateable to some folks, I'm sure. I feel better than I have in a long time. Afterward, I found out that my aunt has also been very allergic to wheat and gluten (among other stuff) for the last 30 years. I don't think my mom tolerates it too well, either. I also have a cousin who is allergic to wheat/gluten. From what I understand, it does run in families. I use recipes that are found on this group's home page. My husband gets mostly gluten free stuff here. I am sure he eats other stuff away from home. He just does not bring it home. Sometimes I will make something that I can add his tomatoes or his store bought soy meat (contains wheat) to his portion separately. We have our separate loaves of bread. I don't spend a lot of time in the kitchen if I can avoid it. There are a lot of good recipes in the files here. Sorry for the long winded expalnation. Hope it helped some, though. Good luck, Danielle H-S This email address is private. Please do not share. For bulk mailings, please use bcc. Thank you. :-) Erin <truepatriot Saturday, November 11, 2006 5:32:13 PM how'd you know/confirm? I joined this group quite some time ago and have been lurking since. I do not follow a gluten-free diet, though vegan (so the recipes are definitely applicable). I have found, in keeping my protein as high as I like, and my calories low, that I use seitan on a regular basis (it has a very high protein to calorie ratio). However, I suspect I may have, or have caused (is this possible?), a gluten intolerance or celiac disease (the difference is unclear to me yet). So, some questions: 1) What symptoms did you all have that had you realize your " predicament? " (I only occcasionally get intense gastro- intestinal cramping. What is more common for me is a fuzzy-headed dizziness with weird sensations in my face and fingers.) 2) What tests did you use to confirm your suspicions? 3) Which non-gluten protein sources rival the 21 grams of protein per 100 calories of wheat gluten (seitan)? 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Guest guest Posted November 13, 2006 Report Share Posted November 13, 2006 You can't cause a gluten intolerance, which is diagnosed as Celiac Sprue, but you might be one of the many who are prone to it. I am not medically-trained at all, but could be that your GI problems might be related to your high protein intake, kind of like the GI probs experiences by cowboys who were stuck with only beef cuz they had no other food types part of the year to balance? I hope that doesn't sound crazy. You could check to see if you're anemic, and do a few other blood tests to see if you are presenting any symptoms. Those are pretty easy and relatively painless, unless you hate needles. Hope you feel better, at any rate. Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2006 Report Share Posted November 14, 2006 , JoProut wrote: > > You can't cause a gluten intolerance, which is diagnosed as Celiac Sprue, > but you might be one of the many who are prone to it. However, you can cause an allergy, correct? My suspicions are not so much due to any GI problems. I actually fare quite well in that department. Ah well, I'm gathering from you and Danielle (and the lack of more responses) that most just take their hunch and run with it. That is, they attempt an extended elimination diet and observe whether they feel better. Is there no specific blood test for either gluten allergy or intolerance? Or is it perhaps inconclusive anyway? (This is my understanding from the reading I have done on the web.) I guess some day I will just have to suck it up and try an elimination diet for a month or two and see. So far, I've apparently been in denial and obstinately proceed with the status quo. (I assume I'm not the only one who took their time in getting around to such an experiment.) Thanks, -Erin www.zenpawn.com/vegblog Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2006 Report Share Posted November 14, 2006 Erin, The symptoms you describe are most definitely included in the long list of celiac-related symptoms. Doesn't mean you have it, but a test would be good for sure. My entire family had the antibody tests (blood tests) come back negative, so I don't put much stock in them. I recommend a genetic test that you can get in the mail, complete by swabbing your cheeks, send in, and have the results sent to a Dr. (or not, depending on your home state - there are different rules) and then forwarded to you. This will tell you if you have the genetic material necessary to make if possible for you to have Celiac Disease. If you don't have the genes, it is not possible for you to have the disease. Then, you can go from there. The gold standard test remains the intestinal biopsy, if you can stomach it. You are bombarding yourself with gluten right now, so even the blood test may come back positive if you have CD (you must be ingesting gluten for this test to come back positive). The company we used for the genetic testing is Kimball Genetics - they are very helpful on the phone - look at their website - their test was about $400. I guess there is another company - www.enterolab.com - doing a less expensive test of the same kind (around $150). It really is worth it to know. Some of the members of my family are like different people now that they are gluten free. Good luck and I hope you feel better. I don't have my stats on the protein question ready, but I will write again with info on that. -Anne > " Erin " <truepatriot > > > how'd you know/confirm? >Sat, 11 Nov 2006 23:32:13 -0000 > >I joined this group quite some time ago and have been lurking since. >I do not follow a gluten-free diet, though vegan (so the recipes are >definitely applicable). I have found, in keeping my protein as high >as I like, and my calories low, that I use seitan on a regular basis >(it has a very high protein to calorie ratio). > >However, I suspect I may have, or have caused (is this possible?), a >gluten intolerance or celiac disease (the difference is unclear to me >yet). So, some questions: > >1) What symptoms did you all have that had you realize >your " predicament? " (I only occcasionally get intense gastro- >intestinal cramping. What is more common for me is a fuzzy-headed >dizziness with weird sensations in my face and fingers.) > >2) What tests did you use to confirm your suspicions? > >3) Which non-gluten protein sources rival the 21 grams of protein per >100 calories of wheat gluten (seitan)? > > >Thanks! >-Erin >www.zenpawn.com/vegblog > > _______________ All-in-one security and maintenance for your PC. Get a free 90-day trial! http://clk.atdmt.com/MSN/go/msnnkwlo0050000002msn/direct/01/?href=http://www.win\ dowsonecare.com/?sc_cid=msn_hotmail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2006 Report Share Posted November 14, 2006 Hi! I'm pretty new to the forum...but thought I'd contribute a bit here!! There is a test...it's called the anti-gliadin anitibody test..if i remember correctly gliadin is the protein compnent and that is what we mount an immunological response to...i believe it is a saliva test..there's more info here http://www.gdx.net/home/assessments/celiac/ from what i understand the anti-gliadin antibody test will show a range from sensitivity to celiac hope that helps a bit... Nicole , " Erin " <truepatriot wrote: > > , JoProut@ wrote: > > > > You can't cause a gluten intolerance, which is diagnosed as Celiac > Sprue, > > but you might be one of the many who are prone to it. > > However, you can cause an allergy, correct? > > My suspicions are not so much due to any GI problems. > I actually fare quite well in that department. > > Ah well, I'm gathering from you and Danielle (and the > lack of more responses) that most just take their hunch > and run with it. That is, they attempt an extended > elimination diet and observe whether they feel better. > Is there no specific blood test for either gluten allergy > or intolerance? Or is it perhaps inconclusive anyway? > (This is my understanding from the reading I have done > on the web.) > > I guess some day I will just have to suck it up and try > an elimination diet for a month or two and see. So far, > I've apparently been in denial and obstinately proceed > with the status quo. (I assume I'm not the only one who > took their time in getting around to such an experiment.) > > > Thanks, > -Erin > www.zenpawn.com/vegblog > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2006 Report Share Posted November 14, 2006 Not all gluten intolerance is CD. Gluten intolerance can occur if one no longer produces the correct enzyme for processing gluten similar to a developed lactose intolerance from under-production of lactase. This MIGHT be a failing of the pancreas and some people find it possible to treat with a form of pancreatic enzymes. Technically non-CD gluten intolerance does not show flattened villi on a biopsy, but because there are several other disorders now being shown to cause flattened villi, even that is being questioned. Allergies are an entirely different bird and you can develop an allergy mediated in one of two ways (probably more but for our purpose the two are the most important). One is an IgE mediation which usually means hives, breathing problems, congestion, brain/thinking problems, etc. The other is an IgG mediation which is usually responsible for changes in mood, behviour, hyperactivity, sleepiness, etc. One of the things which seems to be confusing to medical professionals is the CD is responsible for a hyper-immune response, meaning that sometimes it appears that someone with undiagnosed CD has developed an immune response and their body reacts to everything by producing an antibody. This is why many people with CD are also intolerant of ALOT of other foods until they have been GF for up to a year or more. BL On 11/14/06, Erin <truepatriot wrote: > > --- In <%40>, > JoProut wrote: > > > > You can't cause a gluten intolerance, which is diagnosed as Celiac > Sprue, > > but you might be one of the many who are prone to it. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2006 Report Share Posted November 15, 2006 This is my first post here but I wanted to respond to how we knew about our gluten intolerance. I am the mother of 2 gluten free/casein free daughters. One of them is also soy intolerant and a vegetarian, so pretty close to being a vegan. I'm looking here for ideas of what to feed her. We found out by using Enterolab. You can find out about it at www.enterolab.com. My younger daughter had GI symptoms but was never positive on the blood tests. I wasn't convinced that gluten wasn't the problem so continued reading online about it and found out about Enterolab. She tested positive and so then we tested my other daughter and I. We were also positive even though we had no GI symptoms. Since going GF, we have noticed improved mood and in my case, a clearer head. My daughter's GI symptoms have gone away and my other daughter and I are convinced by how we feel mentally that GF is the right thing for us. So while we did do this test, it really was eliminating it that showed us it was the right thing. The test is a stool test that looks for the IgA antibody. After we tested for gluten, we also did the test looking for the antibody to casein. The lab also tests for intolerances to soy, egg, and yeast. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2007 Report Share Posted January 12, 2007 Unhulled sesame seeds are 24% protein (not to mention all that calcium), hemp seeds are 33% protein, hemp seed powder is 50% protein. Laura G. Erin wrote: > > > 3) Which non-gluten protein sources rival the 21 grams of protein per > 100 calories of wheat gluten (seitan)? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2007 Report Share Posted January 14, 2007 Well, that sounds impressive and all until you consider the calories. I'm guessing those percentages are based on weight? To get 21 g of protein from sesame seeds, for example, you'd have to eat 800 calories worth! Hemp protein powder isn't too bad, requiring only 182 calories to reach the 21 grams provided by 100 calories of wheat gluten. I have settled on brown rice protein powder, which is even better at 110 calories, and negligible fat. Thanks, -Erin www.zenpawn.com/vegblog , Laura G <jsbach wrote: > > Unhulled sesame seeds are 24% protein (not to mention all that calcium), > hemp seeds are 33% protein, hemp seed powder is 50% protein. > > Laura G. > > Erin wrote: > > > > > > > 3) Which non-gluten protein sources rival the 21 grams of protein per > > 100 calories of wheat gluten (seitan)? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2007 Report Share Posted January 14, 2007 , " Erin " <truepatriot wrote: > > I have settled on brown rice protein powder, which > is even better at 110 calories, and negligible fat. Replying to my own message. Tsk, tsk... The one downside to protein powders is they do not make a meal, whereas with gluten, I was able to make the most convincing meat substitutes (seitan). -Erin www.zenpawn.com/vegblog Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2007 Report Share Posted January 14, 2007 You're not supposed to get all your protein from just one food, like taking a pill. The idea is to have many high protein foods you like, and use them often. Laura G. Erin wrote: > Well, that sounds impressive and all until you consider > the calories. I'm guessing those percentages are based > on weight? To get 21 g of protein from sesame seeds, > for example, you'd have to eat 800 calories worth! > > Hemp protein powder isn't too bad, requiring only 182 > calories to reach the 21 grams provided by 100 calories > of wheat gluten. > > I have settled on brown rice protein powder, which > is even better at 110 calories, and negligible fat. > > Thanks, > -Erin > www.zenpawn.com/vegblog > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2007 Report Share Posted January 15, 2007 LOL. No kidding. I didn't mean to imply that was the case. It most certainly is not with my diet. -Erin www.zennpawn.com/vegblog , Laura G <jsbach wrote: > > You're not supposed to get all your protein from just one food, like > taking a pill. The idea is to have many high protein foods you like, and > use them often. > > Laura G. > > Erin wrote: > > > Well, that sounds impressive and all until you consider > > the calories. I'm guessing those percentages are based > > on weight? To get 21 g of protein from sesame seeds, > > for example, you'd have to eat 800 calories worth! > > > > Hemp protein powder isn't too bad, requiring only 182 > > calories to reach the 21 grams provided by 100 calories > > of wheat gluten. > > > > I have settled on brown rice protein powder, which > > is even better at 110 calories, and negligible fat. > > > > Thanks, > > -Erin > > www.zenpawn.com/vegblog > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2007 Report Share Posted January 16, 2007 what can you use protein powders for? Erin <truepatriot wrote: --- In , " Erin " <truepatriot wrote: > > I have settled on brown rice protein powder, which > is even better at 110 calories, and negligible fat. Replying to my own message. Tsk, tsk... The one downside to protein powders is they do not make a meal, whereas with gluten, I was able to make the most convincing meat substitutes (seitan). -Erin www.zenpawn.com/vegblog love, Kim My Blog URL http://blog.myspace.com/queenofpittsburgh Bored stiff? Loosen up... Download and play hundreds of games for free on Games. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2007 Report Share Posted January 16, 2007 On Jan 16, 2007, at 9:37 AM, Kimberly Miller wrote: > what can you use protein powders for? I use them to keep my reflux at bay and to keep myself from losing too much weight. ygg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2007 Report Share Posted January 16, 2007 Protein powder was very helpful when ds had nasty canker sores and couldn't chew anything. I made a lot of smoothies with rice protein. Tried hemp, but he didn't like the taste. Laurie <lbilyeu lbilyeu _____ On Behalf Of Kimberly Miller Tuesday, January 16, 2007 9:38 AM Re: Re: how'd you know/confirm? what can you use protein powders for? Erin <truepatriot@ <truepatriot%40metrocast.net> metrocast.net> wrote: Vegan-and-Gluten- <%40> Free , " Erin " <truepatriot wrote: > > I have settled on brown rice protein powder, which > is even better at 110 calories, and negligible fat. Replying to my own message. Tsk, tsk... The one downside to protein powders is they do not make a meal, whereas with gluten, I was able to make the most convincing meat substitutes (seitan). -Erin www.zenpawn.com/vegblog love, Kim My Blog URL http://blog. <http://blog.myspace.com/queenofpittsburgh> myspace.com/queenofpittsburgh Bored stiff? Loosen up... Download and play hundreds of games for free on Games. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2007 Report Share Posted January 17, 2007 Personally, as a Calorie Restriction practitioner, I am convinced of the need for extra protein in order to maintain muscle mass, including heart. To that end, and to keep my calories low, I pay heed to the protein/calorie ratio (and that of nutrients/calorie in general). Hence my analysis in this thread and my conclusion that rice protein powder is next in line after gluten, with the unfortunate inability of the former to contribute to a meal, as I had with seitan. -Erin www.zenpawn.com/vegblog , Kimberly Miller <queenofpittsburgh wrote: > > what can you use protein powders for? > > Erin <truepatriot wrote: Vegan-and-Gluten- Free , " Erin " <truepatriot@> > wrote: > > > > I have settled on brown rice protein powder, which > > is even better at 110 calories, and negligible fat. > > Replying to my own message. Tsk, tsk... > > The one downside to protein powders is they do not > make a meal, whereas with gluten, I was able to make > the most convincing meat substitutes (seitan). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2007 Report Share Posted January 18, 2007 Erin, I'm not sure if they make this, but what about a quinoa powder? Not sure about the cal content, but I am of the understanding that it is great in terms of carb/protein ratio. Would this be an acceptable substitute? Marie =) On 1/17/07, Erin <truepatriot wrote: > > Personally, as a Calorie Restriction practitioner, > I am convinced of the need for extra protein in > order to maintain muscle mass, including heart. > To that end, and to keep my calories low, I pay > heed to the protein/calorie ratio (and that of > nutrients/calorie in general). Hence my analysis > in this thread and my conclusion that rice protein > powder is next in line after gluten, with the > unfortunate inability of the former to contribute > to a meal, as I had with seitan. > > -Erin > www.zenpawn.com/vegblog > > --- In <%40>, > Kimberly Miller > <queenofpittsburgh wrote: > > > > what can you use protein powders for? > > > > Erin <truepatriot wrote: Vegan-and-Gluten- > Free <Free%40>, " Erin " <truepatriot@> > > wrote: > > > > > > I have settled on brown rice protein powder, which > > > is even better at 110 calories, and negligible fat. > > > > Replying to my own message. Tsk, tsk... > > > > The one downside to protein powders is they do not > > make a meal, whereas with gluten, I was able to make > > the most convincing meat substitutes (seitan). > > > Quote Link to comment Share on other sites More sharing options...
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