Guest guest Posted January 6, 2009 Report Share Posted January 6, 2009 My name is Michelle, married, 3 kids and husband all in Ohio. I was diagnosed with Multiple Schlerosis in 2005. My MS was already 10 years old when they found it. MS-is an adverse reaction to the environment they think. No one knows the exact reasoning behind it. I've never really enjoyed eating meat or drinking milk so I decided tonight to join other vegetarians. Since joining this group tonight, I looked up the symptoms of being allergic to gluten. I HAVE EVERY SINGLE SYMPTOM! MS attacks the brain and spinal cord. It is concidered an immunity disease. I also have OCD, Obseccessive Compulsive disorder. My entire side of the family have all of the symptoms of an allergy to gluten but not MS. Who should I talk to about getting tested for an allergy to gluten-my family doctor, neurologist or do I need to go to an allergy specialist? Thanks for allowing me to join, MichelleS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2009 Report Share Posted January 6, 2009 You're going in the right direction Michelle. In addition to getting onto a gluten-free diet, you may want to look into what Dr. John McDougall offers on MS. He has a lot of information on his website that you might be interested in. Here are two of the links: http://www.drmcdougall.com/stars/050812tasic.html http://www.drmcdougall.com/stars/donna_mcfarland.htm Wishing you all the best, Deborah My name is Michelle, married, 3 kids and husband all in Ohio. I was diagnosed with Multiple Schlerosis in 2005. My MS was already 10 years old when they found it. MS-is an adverse reaction to the environment they think. No one knows the exact reasoning behind it. I've never really enjoyed eating meat or drinking milk so I decided tonight to join other vegetarians. Since joining this group tonight, I looked up the symptoms of being allergic to gluten. I HAVE EVERY SINGLE SYMPTOM! MS attacks the brain and spinal cord. It is concidered an immunity disease. I also have OCD, Obseccessive Compulsive disorder. My entire side of the family have all of the symptoms of an allergy to gluten but not MS. Who should I talk to about getting tested for an allergy to gluten-my family doctor, neurologist or do I need to go to an allergy specialist? Thanks for allowing me to join, MichelleS . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2009 Report Share Posted January 6, 2009 Hi Michelle, Welcome to the blog, I hope it helps you on your journey. If you want to reach a reliable diagnosis of any allergy then I'd go to an allergist. Ask for the works, start writing down all the foods you eat a lot of and ask that these be tested via blood works. I think this will give you a clearer picture of what you are allergic to or have an intolerance for. Kindly, Nancy , " Michelle " <msteen wrote: > > My name is Michelle, married, 3 kids and husband all in Ohio. I was > diagnosed with Multiple Schlerosis in 2005. My MS was already 10 > years old when they found it. > MS-is an adverse reaction to the environment they think. No one knows > the exact reasoning behind it. > I've never really enjoyed eating meat or drinking milk so I decided > tonight to join other vegetarians. Since joining this group tonight, > I looked up the symptoms of being allergic to gluten. I HAVE EVERY > SINGLE SYMPTOM! > MS attacks the brain and spinal cord. It is concidered an immunity > disease. > I also have OCD, Obseccessive Compulsive disorder. > My entire side of the family have all of the symptoms of an allergy > to gluten but not MS. > Who should I talk to about getting tested for an allergy to gluten- my > family doctor, neurologist or do I need to go to an allergy > specialist? > Thanks for allowing me to join, > MichelleS > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2009 Report Share Posted January 6, 2009 Celiac and MS are both auto-immune diseases, and if you have one you have a much higher chance of having another. The susceptibilities tend to be associated with the same genes; for example: http://www.ncbi.nlm.nih.gov/Omim/getmap.cgi?chromosome=celiac & start=3648 Triggers can be chemicals in your environment, viruses/bacteria, lectins or other substances in the diet, etc. Pam On Mon, Jan 5, 2009 at 9:14 PM, Michelle <msteen wrote: > My name is Michelle, married, 3 kids and husband all in Ohio. I was > diagnosed with Multiple Schlerosis in 2005. My MS was already 10 > years old when they found it. > MS-is an adverse reaction to the environment they think. No one knows > the exact reasoning behind it. > I've never really enjoyed eating meat or drinking milk so I decided > tonight to join other vegetarians. Since joining this group tonight, > I looked up the symptoms of being allergic to gluten. I HAVE EVERY > SINGLE SYMPTOM! > MS attacks the brain and spinal cord. It is concidered an immunity > disease. > I also have OCD, Obseccessive Compulsive disorder. > My entire side of the family have all of the symptoms of an allergy > to gluten but not MS. > Who should I talk to about getting tested for an allergy to gluten-my > family doctor, neurologist or do I need to go to an allergy > specialist? > Thanks for allowing me to join, > MichelleS > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2009 Report Share Posted January 6, 2009 Deborah- Thank you so much! This doctor is saying what I've suspected for a long time regarding foods and MS! I feel horrible and have no energy eating the basic 4 food groups. I just knew there was something to my eating habits and the way I feel! Thank you so much for the links. I have saved those to my MS favorites folder!!! MichelleS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2009 Report Share Posted January 6, 2009 To further what Nancy said: If you are getting blood-tested for food allergies, I'd make sure they're testing you for both immediate (IgE) and latent (IgG) allergies. Many adults (and kids, but largely adults from what I've seen) have latent food allergies instead of the immediate ones. Plenty of doctors only think to test you for the immediate, though. And don't let them talk you into the skin-prick test, either----it's uselessly painful for food allergies. One vial of blood, and you can test way more stuff much more easily. I've written a whole blog post about my diagnosis process, which you can read here if you'd like: http://aprovechar.danandsally.com/?p=321. I won't rehash it all there, but basically, I didn't fit into an easily diagnosable case of gluten intolerance/celiac disease, yet I AM gluten intolerant. I know a lot of people in this group are the same. It took the test from www.enterolab.com (which I paid for out of pocket) to get an official diagnosis, after I realized that being allergic to 30-odd foods meant I must have something bigger going on. Getting my food allergy and gluten/casein intolerance diagnoses has been a godsend for me. Sally On Mon, Jan 5, 2009 at 11:56 PM, dragonfly777_68 <dragonfly777_68wrote: > Hi Michelle, > > Welcome to the blog, I hope it helps you on your journey. If you > want to reach a reliable diagnosis of any allergy then I'd go to an > allergist. Ask for the works, start writing down all the foods you > eat a lot of and ask that these be tested via blood works. > > I think this will give you a clearer picture of what you are allergic > to or have an intolerance for. > > Kindly, > > Nancy > > --- In <%40>, > " Michelle " <msteen > wrote: > > > > > My name is Michelle, married, 3 kids and husband all in Ohio. I was > > diagnosed with Multiple Schlerosis in 2005. My MS was already 10 > > years old when they found it. > > MS-is an adverse reaction to the environment they think. No one > knows > > the exact reasoning behind it. > > I've never really enjoyed eating meat or drinking milk so I decided > > tonight to join other vegetarians. Since joining this group > tonight, > > I looked up the symptoms of being allergic to gluten. I HAVE EVERY > > SINGLE SYMPTOM! > > MS attacks the brain and spinal cord. It is concidered an immunity > > disease. > > I also have OCD, Obseccessive Compulsive disorder. > > My entire side of the family have all of the symptoms of an allergy > > to gluten but not MS. > > Who should I talk to about getting tested for an allergy to gluten- > my > > family doctor, neurologist or do I need to go to an allergy > > specialist? > > Thanks for allowing me to join, > > MichelleS > > > > > -- " This isn't a matter of Republican and Democrat. It's not liberal. It's not conservative. It's simply common sense. This is a national emergency. . . . You have to be honest about the way the biosphere works, and we have to move this country very rapidly in a different direction. " --John Orr Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2009 Report Share Posted January 6, 2009 A gastroenterologist is your best bet, although you need to find a good one who will listen and do the tests. I luckily found a great one a few months back. His name is Earnest Stanley and he's in Pittsburgh. He has an office in Cranberry, which is a good drive from Ohio but not too bad (if your not the one driving). lol I hate driving! Anyway, if your able to make a trip down to see him, he is the best! I've been to every GI doctor in western PA and a few in Ohio! They have a website, gihealth.com if you want to look up info on them and see if they accept you insurance or anything like that. I have found that e-mailing them is faster as the phone is always busy! If you can't make it down to see him, perhaps they would be able to recommend a doctor in your area. On a personal note, if you feel the diet will help you, put yourself on it. You don't need a diagnosis to tell you how you feel! If you feel better on the diet, stick to it! A while back I had read that a gluten and casein free diet could possibly help relieve some neurological symptoms. It's worth trying! I ended up putting myself on the diet and almost 4 years later I finally got a confirmed diagnosis! I didn't wait around suffering while the doctors kept insisting IBS and throwing pills at me. Sometimes you have to take matters into your own hands. After all, it's your body and you have to live in it 24/7! Good luck! On Mon, Jan 5, 2009 at 11:14 PM, Michelle <msteen wrote: > My name is Michelle, married, 3 kids and husband all in Ohio. I was > diagnosed with Multiple Schlerosis in 2005. My MS was already 10 > years old when they found it. > MS-is an adverse reaction to the environment they think. No one knows > the exact reasoning behind it. > I've never really enjoyed eating meat or drinking milk so I decided > tonight to join other vegetarians. Since joining this group tonight, > I looked up the symptoms of being allergic to gluten. I HAVE EVERY > SINGLE SYMPTOM! > MS attacks the brain and spinal cord. It is concidered an immunity > disease. > I also have OCD, Obseccessive Compulsive disorder. > My entire side of the family have all of the symptoms of an allergy > to gluten but not MS. > Who should I talk to about getting tested for an allergy to gluten-my > family doctor, neurologist or do I need to go to an allergy > specialist? > Thanks for allowing me to join, > MichelleS > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2009 Report Share Posted January 6, 2009 A gastroenterologist is your best bet, although you need to find a good one who will listen and do the tests. I luckily found a great one a few months back. His name is Earnest Stanley and he's in Pittsburgh. He has an office in Cranberry, which is a good drive from Ohio but not too bad (if your not the one driving). lol I hate driving! Anyway, if your able to make a trip down to see him, he is the best! I've been to every GI doctor in western PA and a few in Ohio! They have a website, gihealth.com if you want to look up info on them and see if they accept you insurance or anything like that. I have found that e-mailing them is faster as the phone is always busy! If you can't make it down to see him, perhaps they would be able to recommend a doctor in your area. On a personal note, if you feel the diet will help you, put yourself on it. You don't need a diagnosis to tell you how you feel! If you feel better on the diet, stick to it! A while back I had read that a gluten and casein free diet could possibly help relieve some neurological symptoms. It's worth trying! I ended up putting myself on the diet and almost 4 years later I finally got a confirmed diagnosis! I didn't wait around suffering while the doctors kept insisting IBS and throwing pills at me. Sometimes you have to take matters into your own hands. After all, it's your body and you have to live in it 24/7! Good luck! On Mon, Jan 5, 2009 at 11:14 PM, Michelle <msteen wrote: > My name is Michelle, married, 3 kids and husband all in Ohio. I was > diagnosed with Multiple Schlerosis in 2005. My MS was already 10 > years old when they found it. > MS-is an adverse reaction to the environment they think. No one knows > the exact reasoning behind it. > I've never really enjoyed eating meat or drinking milk so I decided > tonight to join other vegetarians. Since joining this group tonight, > I looked up the symptoms of being allergic to gluten. I HAVE EVERY > SINGLE SYMPTOM! > MS attacks the brain and spinal cord. It is concidered an immunity > disease. > I also have OCD, Obseccessive Compulsive disorder. > My entire side of the family have all of the symptoms of an allergy > to gluten but not MS. > Who should I talk to about getting tested for an allergy to gluten-my > family doctor, neurologist or do I need to go to an allergy > specialist? > Thanks for allowing me to join, > MichelleS > > > Quote Link to comment Share on other sites More sharing options...
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