Guest guest Posted May 15, 2009 Report Share Posted May 15, 2009 Hi all, I have an acquaintance who has two sons diagnosed with autism. She is beginning to explore the connection between autism and gluten/casein and is feeling overwhelmed. If any of you have support group info that you think could help her, I'd appreciate hearing about it. I'm hoping specifically to find a " tried and true " for parents of autistic children who are pursuing a gluten-free casein-free diet. Thanks, Karen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2009 Report Share Posted May 15, 2009 Hi Karen I have run a group on for going on 9 years now. Originally we were just recipes for people using gfcf for treatment of ASD, but over that time we have expanded to over 5000 members and some are there for CD. However, predominantly the group members are parents of children with ASD. Our archives on recipe circus have over 2500 TNT recipes and we do offer talk about all kinds of biomedical treatment as well. Certainly we would be happy to have your friend join us to ask her questions. The group is not specifically vegetarian, but indeed it is for parents pursuing biomedical interventions including GFCF and SCD for ASD. The group is GFCFRecipes. Have your friend go to www. and search the group title in the search option box. There is also GFCFKids, but it's a pretty fast and furious list. On my group, we try to maintain a quiet calm, no fighting attitude so that people can feel comfortable asking all sorts of questions. We also get to hear great recovery and how my child is progressing reports from parents who have been at it a long time or a little and we welcome all of those as well. In fact we just had a report today from a member who has been with us 6 years. Her two boys were originally diagnosed with ASD and today her eldest got results back on his Ravens (gifted program), scoring in the 99% range a huge change for a child who didn't speak until he was 3. BL On Thu, May 14, 2009 at 6:10 PM, Karen Ekkens <Karen.Ekkenswrote: > > > Hi all, > > I have an acquaintance who has two sons diagnosed with autism. She is > beginning to explore the connection between autism and gluten/casein and > is feeling overwhelmed. If any of you have support group info that you > think could help her, I'd appreciate hearing about it. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2009 Report Share Posted May 15, 2009 gfcfrecipes Pam On Thu, May 14, 2009 at 7:10 PM, Karen Ekkens <Karen.Ekkens wrote: > > > Hi all, > > I have an acquaintance who has two sons diagnosed with autism. She is > beginning to explore the connection between autism and gluten/casein and > is feeling overwhelmed. If any of you have support group info that you > think could help her, I'd appreciate hearing about it. I'm hoping > specifically to find a " tried and true " for parents of > autistic children who are pursuing a gluten-free casein-free diet. > > Thanks, > > Karen > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2009 Report Share Posted May 15, 2009 GFCFRecipes and GFCFKids are two great groups. Both are pretty active, though. The Recipes one has a link to a recipe archive (like a giant on-line cookbook. Awesome moderator. GFCFKids deals not only with the diet but lots of different issues. The moderator is Dana from www.danasview.net, a great on-line resource for lots of issues. The TACA website is a great resource for starting the diet. They also have a group. I have 2 kids with ASD that I am trying to recover if she has any questions. --- On Thu, 5/14/09, Karen Ekkens <Karen.Ekkens wrote: > Karen Ekkens <Karen.Ekkens > Re: group for > I have an acquaintance who has two sons diagnosed with Autism. > beginning to explore the connection between autism and > gluten/casein > > is feeling overwhelmed. If any of you have support group > info that you > > think could help her, I'd appreciate hearing about it. > I'm hoping > > specifically to find a " tried and true " > group for parents of > > autistic children who are pursuing a gluten-free > casein-free diet. > > > > Thanks, > > > > Karen > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2009 Report Share Posted May 15, 2009 I suggest she contact Meagan McGovern http:// www.mcgovernsorganics.com/ and speak to her. Meagan's younger son has/had autism. He was non-verbal, made no eye contact, screamed incessantly and stimmed. She took him off gluten, casein and a bunch of other things and started with high doses of certain supplements. The child has made a full recovery, however, if he so much as has a tiny bit of gluten or dairy he starts showing signs of autism again. Meagan is a wonderfully compassionate woman who is reaching out to the autism community. She provides free advice and support and can direct your friend to the most helpful groups. Shez On May 14, 2009, at 9:10 PM, Karen Ekkens wrote: > Hi all, > > I have an acquaintance who has two sons diagnosed with autism. She is > beginning to explore the connection between autism and gluten/casein > and > is feeling overwhelmed. If any of you have support group info that > you > think could help her, I'd appreciate hearing about it. I'm hoping > specifically to find a " tried and true " for parents of > autistic children who are pursuing a gluten-free casein-free diet. > > Thanks, > > Karen > > > --- > > Our vegan and gluten free recipes are available in the > archives for this group or at the following URL (***Recipes Posted > to VGF***): > > > > Check out these affiliated vegan lists ~ > > http://www.Christian-Vegan-Cooking > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2009 Report Share Posted May 20, 2009 Many thanks to all of you who responded! I have shared the info with my friend. Karen Sherene Silverberg wrote: > > > I suggest she contact Meagan McGovern http:// > www.mcgovernsorganics.com/ and speak to her. > > Meagan's younger son has/had autism. He was non-verbal, made no eye > contact, screamed incessantly and stimmed. > > She took him off gluten, casein and a bunch of other things and > started with high doses of certain supplements. The child has made a > full recovery, however, if he so much as has a tiny bit of gluten or > dairy he starts showing signs of autism again. > > Meagan is a wonderfully compassionate woman who is reaching out to the > autism community. She provides free advice and support and can direct > your friend to the most helpful groups. > > Shez > On May 14, 2009, at 9:10 PM, Karen Ekkens wrote: > > > Hi all, > > > > I have an acquaintance who has two sons diagnosed with autism. She is > > beginning to explore the connection between autism and gluten/casein > > and > > is feeling overwhelmed. If any of you have support group info that > > you > > think could help her, I'd appreciate hearing about it. I'm hoping > > specifically to find a " tried and true " for parents of > > autistic children who are pursuing a gluten-free casein-free diet. > > > > Thanks, > > > > Karen > > > > > > --- > > > > Our vegan and gluten free recipes are available in the > > archives for this group or at the following URL (***Recipes Posted > > to VGF***): > > > > > <> > > > > Check out these affiliated vegan lists ~ > > > > http://www.Christian-Vegan-Cooking > <http://www.Christian-Vegan-Cooking> > > Quote Link to comment Share on other sites More sharing options...
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