Guest guest Posted October 24, 2009 Report Share Posted October 24, 2009 Hi all, I plan to take the Gluten Antibody IgG & IgA profile testing. Am I correct that if I test negative that I am NOT sensitive to gluten? That therefore gluten is not harmful to me? I have been working with a GF diet now for about 3 weeks & don't find it too too difficult since I only have to prepare food for myself. But still if it's not necessary to follow this diet for me, I would just as soon know it & go back on what was essentially the Mediterranean diet. Thanks, Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2009 Report Share Posted October 25, 2009 I tested negative with the IgG & IgA tests but the small bowel biopsy confirmed celiac. It's less accurate if you've been following the diet. Pam Norman <pam_norman Saturday, October 24, 2009 6:18 PM Gluten antibody testing Hi all, I plan to take the Gluten Antibody IgG & IgA profile testing. Am I correct that if I test negative that I am NOT sensitive to gluten? That therefore gluten is not harmful to me? I have been working with a GF diet now for about 3 weeks & don't find it too too difficult since I only have to prepare food for myself. But still if it's not necessary to follow this diet for me, I would just as soon know it & go back on what was essentially the Mediterranean diet. Thanks, Pam [The entire original message is not included] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2009 Report Share Posted October 25, 2009 Pam, I was told that the antibody blood test will only work if you are currently eating gluten because the antibodies will only be present to fight the gluten if gluten is in your system. So, if you've been gluten free for 3 weeks, then the gluten antibody test would come back negative even if you are sensitive because there is no gluten in your system to create the antibodies. Someone please correct me if I'm wrong, but this is what I was told when I wanted to have the antibodies test after I had been GF for a few months. Clara I. Ogren-Rubalcaba http://www.sixfoodintolerance.com Silver Spring Gluten Free Food Examiner: http://bit.ly/SilverSpringGlutenFree National Soy Free Food Examiner: http://bit.ly/SoyFree Follow Me on Twitter: http://twitter.com/6foodintolerant On Sat, Oct 24, 2009 at 6:18 PM, Pam Norman <pam_norman wrote: > > > Hi all, > > I plan to take the Gluten Antibody IgG & IgA profile testing. Am I > correct that if I test negative that I am NOT sensitive to gluten? That > therefore gluten is not harmful to me? > > I have been working with a GF diet now for about 3 weeks & don't find it > too too difficult since I only have to prepare food for myself. But > still if it's not necessary to follow this diet for me, I would just as > soon know it & go back on what was essentially the Mediterranean diet. > > Thanks, > > Pam > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2009 Report Share Posted October 25, 2009 Unfortunately, no, that is not correct. IgG and IgA are two ways you can be gluten sensitive or allergic, but they don't rule out gluten sensitivity or gluten intolerance as a whole. On Sat, Oct 24, 2009 at 6:18 PM, Pam Norman <pam_norman wrote: > > > Hi all, > > I plan to take the Gluten Antibody IgG & IgA profile testing. Am I > correct that if I test negative that I am NOT sensitive to gluten? That > therefore gluten is not harmful to me? > > I have been working with a GF diet now for about 3 weeks & don't find it > too too difficult since I only have to prepare food for myself. But > still if it's not necessary to follow this diet for me, I would just as > soon know it & go back on what was essentially the Mediterranean diet. > > Thanks, > > Pam > > -- " If you want to write fiction, the best thing you can do is take two aspirins, lie down in a dark room, and wait for the feeling to pass. If it persists, you probably ought to write a novel. " —Lawrence Block, Writing the Novel From Plot to Print Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2009 Report Share Posted October 25, 2009 Is there any other test then by which I can determine whether I am or am not gluten sensitive, period? Sally Parrott Ashbrook wrote: > Unfortunately, no, that is not correct. IgG and IgA are two ways you can be > gluten sensitive or allergic, but they don't rule out gluten sensitivity or > gluten intolerance as a whole. > > On Sat, Oct 24, 2009 at 6:18 PM, Pam Norman <pam_norman wrote: > > >> Hi all, >> >> I plan to take the Gluten Antibody IgG & IgA profile testing. Am I >> correct that if I test negative that I am NOT sensitive to gluten? That >> therefore gluten is not harmful to me? >> >> I have been working with a GF diet now for about 3 weeks & don't find it >> too too difficult since I only have to prepare food for myself. But >> still if it's not necessary to follow this diet for me, I would just as >> soon know it & go back on what was essentially the Mediterranean diet. >> >> Thanks, >> >> Pam >> >> >> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2009 Report Share Posted October 25, 2009 I would say that if you start to feel better on a gluten-free diet after trying it for, say, three months, that's your answer. However, if I tested negative for gluten sensitivity through the poo and genetic testing from www.enterolab.com and also tested negative for it in IgE and IgG allergy testing, I would assume my issues were other ones, I think. I also think people in this group will have differing opinions about how to answer your query. Sally On Sat, Oct 24, 2009 at 9:22 PM, Pam Norman <pam_norman wrote: > > > Is there any other test then by which I can determine whether I am or am > not gluten sensitive, period? > > > Sally Parrott Ashbrook wrote: > > Unfortunately, no, that is not correct. IgG and IgA are two ways you can > be > > gluten sensitive or allergic, but they don't rule out gluten sensitivity > or > > gluten intolerance as a whole. > > > > On Sat, Oct 24, 2009 at 6:18 PM, Pam Norman <pam_norman<pam_norman%40charter.net>> > wrote: > > > > > >> Hi all, > >> > >> I plan to take the Gluten Antibody IgG & IgA profile testing. Am I > >> correct that if I test negative that I am NOT sensitive to gluten? That > >> therefore gluten is not harmful to me? > >> > >> I have been working with a GF diet now for about 3 weeks & don't find it > >> too too difficult since I only have to prepare food for myself. But > >> still if it's not necessary to follow this diet for me, I would just as > >> soon know it & go back on what was essentially the Mediterranean diet. > >> > >> Thanks, > >> > >> Pam > >> > >> > >> > > > > > > > > > > -- " If you want to write fiction, the best thing you can do is take two aspirins, lie down in a dark room, and wait for the feeling to pass. If it persists, you probably ought to write a novel. " —Lawrence Block, Writing the Novel From Plot to Print Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2009 Report Share Posted October 25, 2009 In a nutshell, no. Sorry. Shannon ----- Receiving the following content ----- Pam Norman Receiver: Time: 2009-10-24, 18:22:25 Re: Gluten antibody testing >Is there any other test then by which I can determine whether I am or am >not gluten sensitive, period? > >Sally Parrott Ashbrook wrote: >> Unfortunately, no, that is not correct. IgG and IgA are two ways you can be >> gluten sensitive or allergic, but they don't rule out gluten sensitivity or >> gluten intolerance as a whole. >> >> On Sat, Oct 24, 2009 at 6:18 PM, Pam Norman wrote: >> >> >>> Hi all, >>> >>> I plan to take the Gluten Antibody IgG & IgA profile testing. Am I >>> correct that if I test negative that I am NOT sensitive to gluten? That >>> therefore gluten is not harmful to me? >>> >>> I have been working with a GF diet now for about 3 weeks & don't find it >>> too too difficult since I only have to prepare food for myself. But >>> still if it's not necessary to follow this diet for me, I would just as >>> soon know it & go back on what was essentially the Mediterranean diet. >>> >>> Thanks, >>> >>> Pam >>> >>> >>> >> >> >> >> > > >_____________________ next part ______________________ > > >Checked by AVG - www.avg.com >Version: 8.5.423 / Virus Database: 270.14.31/2457 - Release 10/24/09 14:31:00 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2009 Report Share Posted October 25, 2009 Small bowel biopsy is the best way to diagnose celiac disease. However, if you do not have celiac, but a gluten sensitivity, there is really no medical test to determine that. Diet is the only way to diagnose. If you start eating gluten again and feel sick, get frequent headaches, joint pain, itchy skin, infections, constipation or diarrhea, or any type of discomfort or painful symptoms then you probably should consider giving up gluten for good. There are those who would rather eat what they like no matter how detrimental it is to their health. If that's the way you feel, there's really nothing anyone can say to help you. You have to decide for yourself whether or not it's worth it. For a long time I ate foods I knew where bad for me, even after going gf. Mostly cheese! Then one night, it was around 4am and I was cramped up and sick in the bathroom yet again, and it dawned on me that this really isn't worth it! I enjoy maybe 20 minutes of pleasure for a week of hell! The pain and suffering just isn't worth it to me! My migraines and sinus infections are gone! My stomach isn't tied up in knots. You couldn't pay me to eat even 1 bite of wheat, dairy or eggs no matter how tempting it looks because I know the consequences and it's not worth it! Maybe it's still worth it to you. Maybe you don't even realize any symptoms! Maybe it would be good for you to try to eat gluten foods again so you can document how you feel and make a list of your symptoms. Then it's choice if it's worth it or not for you to stick to the diet. Whatever you decide, I wish you luck and happiness! 2009/10/24 Shannon West <shanwest > > > In a nutshell, no. Sorry. > > Shannon > > ----- Receiving the following content ----- > Pam Norman > Receiver: > Time: 2009-10-24, 18:22:25 > Re: Gluten antibody testing > > > > > >Is there any other test then by which I can determine whether I am or am > >not gluten sensitive, period? > > > >Sally Parrott Ashbrook wrote: > >> Unfortunately, no, that is not correct. IgG and IgA are two ways you can > be > >> gluten sensitive or allergic, but they don't rule out gluten sensitivity > or > >> gluten intolerance as a whole. > >> > >> On Sat, Oct 24, 2009 at 6:18 PM, Pam Norman wrote: > >> > >> > >>> Hi all, > >>> > >>> I plan to take the Gluten Antibody IgG & IgA profile testing. Am I > >>> correct that if I test negative that I am NOT sensitive to gluten? That > > >>> therefore gluten is not harmful to me? > >>> > >>> I have been working with a GF diet now for about 3 weeks & don't find > it > >>> too too difficult since I only have to prepare food for myself. But > >>> still if it's not necessary to follow this diet for me, I would just as > > >>> soon know it & go back on what was essentially the Mediterranean diet. > >>> > >>> Thanks, > >>> > >>> Pam > >>> > >>> > >>> > >> > >> > >> > >> > > > > > >_____________________ next part ______________________ > > > > > >Checked by AVG - www.avg.com > >Version: 8.5.423 / Virus Database: 270.14.31/2457 - Release 10/24/09 > 14:31:00 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2009 Report Share Posted October 25, 2009 Well said Jae. There are those who would rather eat what they like no matter how detrimental it is to their health. If that's the way you feel, there's really nothing anyone can say to help you. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2009 Report Share Posted October 26, 2009 It is not the way I feel & I didn't mean to convey that. I would simply like to know if there is a way to definitively diagnose gluten sensitivity. I read the post from the person who has realized an improvement in just 4 days & I would certainly say that in her case. the proof is in the pudding! As for me, I've been working with the GF diet now for about 3 weeks & I cannot honestly say I feel any different that I did before I began. Except that I have the flu & feel like hell from that! It is not that I want to feel free to indulge in cakes & pies & candies & all of that because I never did eat like that. I don't mind going on a diet that severely restricts what I eat when I know that it is necessary. When I had Cdiff, I ate a much more restricted diet than the GF diet for 5 months but I was very was very sick & had no choice. This time I wasn't sick when I began a new diet. At least I didn't feel sick. I guess as someone has said, I can go back to the " old ways " & see how I feel eating gluten again. But this is not a matter of simply rebelling again not being able to " eat what I like. " I am just one of those people who'd like the figures laid out in front of me. Pam Deborah Pageau wrote: > > > Well said Jae. > > There are those who would rather eat what they like no matter how > detrimental it is to their health. If that's the way you feel, there's > really nothing anyone can say to help you. > . > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2009 Report Share Posted October 26, 2009 Pam, there is a DNA test. Here is a detailed description of the experience. http://www.celiac.com/articles/834/1/-Your-DNA-Results-Indicate-Super-Celiac-By-\ Scott-Adams/Page1.html Deborah It is not the way I feel & I didn't mean to convey that. I would simply like to know if there is a way to definitively diagnose gluten sensitivity. I read the post from the person who has realized an improvement in just 4 days & I would certainly say that in her case. the proof is in the pudding! As for me, I've been working with the GF diet now for about 3 weeks & I cannot honestly say I feel any different that I did before I began. Except that I have the flu & feel like hell from that! It is not that I want to feel free to indulge in cakes & pies & candies & all of that because I never did eat like that. I don't mind going on a diet that severely restricts what I eat when I know that it is necessary. When I had Cdiff, I ate a much more restricted diet than the GF diet for 5 months but I was very was very sick & had no choice. This time I wasn't sick when I began a new diet. At least I didn't feel sick. I guess as someone has said, I can go back to the " old ways " & see how I feel eating gluten again. But this is not a matter of simply rebelling again not being able to " eat what I like. " I am just one of those people who'd like the figures laid out in front of me. Pam . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2009 Report Share Posted October 26, 2009 How careful are you being about being gluten free? Do you share a toaster or a tub of margarine or a jar of jam or peanut butter with someone who eats gluten? Do you use wooden spoons that you used pre-gluten free? All of those things would interfere with your recovery if you are gluten-intolerant. Shannon ----- Receiving the following content ----- Pam Norman Receiver: Time: 2009-10-25, 16:23:40 Re: Gluten antibody testing >It is not the way I feel & I didn't mean to convey that. I would simply >like to know if there is a way to definitively diagnose gluten >sensitivity. I read the post from the person who has realized an >improvement in just 4 days & I would certainly say that in her case. the >proof is in the pudding! As for me, I've been working with the GF diet >now for about 3 weeks & I cannot honestly say I feel any different that >I did before I began. Except that I have the flu & feel like hell from >that! It is not that I want to feel free to indulge in cakes & pies & >candies & all of that because I never did eat like that. I don't mind >going on a diet that severely restricts what I eat when I know that it >is necessary. When I had Cdiff, I ate a much more restricted diet than >the GF diet for 5 months but I was very was very sick & had no choice. >This time I wasn't sick when I began a new diet. At least I didn't feel >sick. I guess as someone has said, I can go back to the " old ways " & see >how I feel eating gluten again. But this is not a matter of simply >rebelling again not being able to " eat what I like. " I am just one of >those people who'd like the figures laid out in front of me. > >Pam > > >Deborah Pageau wrote: >> >> >> Well said Jae. >> >> There are those who would rather eat what they like no matter how >> detrimental it is to their health. If that's the way you feel, there's >> really nothing anyone can say to help you. >> . >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2009 Report Share Posted October 26, 2009 The DNA test only tells you if you carry the genes for celiac. The genes still need to be turned on for you to have celiac disease. To develop celiac disease you need three things: a) one of the genes b) a triggering event, such as stress, virus, pregnancy, etc. c) exposure to gluten There are a lot of test that are available. Gene testing will show you if you have the genes. If you don`t have the genes, you don`t have celiac, though you could have non-celiac gluten intolerance, or it`s possible that there ar eother genes for celiac that they haven`t discovered yet. There is a blood test to see whether you are producing antibodies to gluten. Or enough antibodies to be considered celiac. A false negative is possible. There is a saliva test. There is a fecal test. Any of them can produce false negatives, if you aren`t eating " enough " gluten. You can get a scope to see how much damage there is to your intestinal tract. If your celiac disease isn't far enough advanced yet, you may not have " enough " damage to be diagnosed celiac. I have an acquaintance whose son was tested for celiac. He had the blood test and it was positive. He had the scope, and they said there wasn't enough damage to be considered celiac, so they could continue feeding him gluten, and he could be checked again in a few years to see if he has developed celiac! So they are happily feeding him a normal, gluten-free diet (the one that has put his dad somewhere around 400 lb, unable to walk without a cane or sleep without a cpap machine) until his intestines have enough holes in them to be considered celiac. Remember that many celiacs never have " classic " celiac symptoms such as diarrhea and weight loss. Many are " symptom free " . I would never have considered myself celiac. I didn't feel much different going off of gluten. But I did go through a " detox " period when going off of gluten, and if I had an infraction, I would get really tired, weepy, moody. There have, over the months, been subtle changes. Changes to my cycle, migraines, patience level, depression/SAD symptoms, etc. In spite of being gluten-free for a couple of years, I did still have a couple of " cheats " that I didn't think made any difference. First, I was eating regular oats. Not certified gluten-free. And secondly, I was still taking sacrament once a week, one small bit of wheat bread. Neither was enough to trigger the tired-and-weepy reaction, so I didn't think they were bothering me. But as the evidence has mounted that I probably have celiac, rather than some other kind of gluten intolerance, and some of my health issues were not clearing up, I decided I'd better go the rest of the way. It has been about a month since I made that resolution, and I have noticed the last week or so that some of the other symptoms are subsiding, and I have a new feeling of wellness. But they are very subtle changes, very small. Some of the possible celiac symptoms that I have experienced in my lifetime are: Chronic Nosebleeds Anemia Depression/SAD Reactions to antibiotics and medications Other environmental allergies and food intolerances Hyperparathyroid symptoms, including kidney stones and chest pain - subclinical, not diagnosed Unexplained infertility Peripheral neuropathy Migraines Unexplained abdominal pain - hospitalized once, suspected gallbladder Rashes Constipation, gas Pam On Sun, Oct 25, 2009 at 6:17 PM, Deborah Pageau <dpageau wrote: > > > Pam, there is a DNA test. Here is a detailed description of the experience. > > > http://www.celiac.com/articles/834/1/-Your-DNA-Results-Indicate-Super-Celiac-By-\ Scott-Adams/Page1.html > > Deborah > > > It is not the way I feel & I didn't mean to convey that. I would simply > like to know if there is a way to definitively diagnose gluten > sensitivity. I read the post from the person who has realized an > improvement in just 4 days & I would certainly say that in her case. the > proof is in the pudding! As for me, I've been working with the GF diet > now for about 3 weeks & I cannot honestly say I feel any different that > I did before I began. Except that I have the flu & feel like hell from > that! It is not that I want to feel free to indulge in cakes & pies & > candies & all of that because I never did eat like that. I don't mind > going on a diet that severely restricts what I eat when I know that it > is necessary. When I had Cdiff, I ate a much more restricted diet than > the GF diet for 5 months but I was very was very sick & had no choice. > This time I wasn't sick when I began a new diet. At least I didn't feel > sick. I guess as someone has said, I can go back to the " old ways " & see > how I feel eating gluten again. But this is not a matter of simply > rebelling again not being able to " eat what I like. " I am just one of > those people who'd like the figures laid out in front of me. > > Pam > . > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2009 Report Share Posted October 26, 2009 I was gluten free for years before doctors listened to me and the first scope was negative for celiac because I had been gf for long enough that my intestines healed. Then I found Dr. Stanley who really listened to me and sent the biopsy for extra testing which showed treated celiac. I was gf for 4 years before confirmed diagnosis. It is possible to diaganosis celiac after being gf for a long time but you have to find a doctor willing to do the extra testing on the biopsy. I had no real choice but to go on the diet as I got to the point in which I couldn't swallow the food. They tested me for lupus because of the rash and everything but food issues! They still don't think allergy testing is nessicary even though I had 3 serious anaphalactic shock eppisodes in the past year! I can't even get an epipen~it's always ask another doctor! So you can see how complicated it is to get a straight honest answer from doctors! If it doesn't require a pill they don't have any straight answers! pdw <pdworkman Sunday, October 25, 2009 11:39 PM Re: Gluten antibody testing The DNA test only tells you if you carry the genes for celiac. The genes still need to be turned on for you to have celiac disease. To develop celiac disease you need three things: a) one of the genes b) a triggering event, such as stress, virus, pregnancy, etc. c) exposure to gluten There are a lot of test that are available. Gene testing will show you if you have the genes. If you don`t have the genes, you don`t have celiac, though you could have non-celiac gluten intolerance, or it`s possible that there ar eother genes for celiac that they haven`t discovered yet. There is a blood test to see whether you are producing antibodies to gluten. Or enough antibodies to be considered celiac. A false negative is possible. There is a saliva test. There is a fecal test. Any of them can produce false negatives, if you aren`t eating " enough " gluten. You can get a scope to see how much damage there is to your intestinal tract. If your celiac disease isn't far enough advanced yet, you may not have " enough " damage to be diagnosed celiac. I have an acquaintance whose son was tested for celiac. He had the blood test and it was positive. He had the scope, and they said there wasn't enough damage to be considered celiac, so they could continue feeding him gluten, and he could be checked again in a few years to see if he has developed celiac! So they are happily feeding him a normal, gluten-free diet (the one that has put his dad somewhere around 400 lb, unable to walk without a cane or sleep without a cpap machine) until his intestines have enough holes in them to be considered celiac. Remember that many celiacs never have " classic " celiac symptoms such as diarrhea and weight loss. Many are " symptom free " . I would never have considered myself celiac. I didn't feel much different going off of gluten. But I did go through a " detox " period when going off of gluten, and if I had an infraction, I would get really tired, weepy, moody. There have, over the months, been subtle changes. Changes to my cycle, migraines, patience level, depression/SAD symptoms, etc. In spite of being gluten-free for a couple of years, I did still have a couple of " cheats " that I didn't think made any difference. First, I was eating regular oats. Not certified gluten-free. And secondly, I was still taking sacrament once a week, one small bit of wheat bread. Neither was enough to trigger the tired-and-weepy reaction, so I didn't think they were bothering me. But as the evidence has mounted that I probably have celiac, rather than some other kind of gluten intolerance, and some of my health issues were not clearing up, I decided I'd better go the rest of the way. It has been about a month since I made that resolution, and I have noticed the last week or so that some of the other symptoms are subsiding, and I have a new feeling of wellness. But they are very subtle changes, very small. Some of the possible celiac symptoms that I have experienced in my lifetime are: Chronic Nosebleeds Anemia Depression/SAD Reactions to antibiotics and medications Other environmental allergies and food intolerances Hyperparathyroid symptoms, including kidney stones and chest pain - subclinical, not diagnosed Unexplained infertility Peripheral neuropathy Migraines Unexplained abdominal pain - hospitalized once, suspected gallbladder Rashes Constipation, gas Pam On Sun, Oct 25, 2009 at 6:17 PM, Deborah Pageau <dpageau wrote: > > > Pam, there is a DNA test. Here is a detailed description of the experience. > > > http://www.celiac.com/articles/834/1/-Your-DNA-Results-Indicate-Super-Celiac-By-\ Scott-Adams/Page1.html > > Deborah > > > It is not the way I feel & I didn't mean to convey that. I would simply > like to know if there is a way to definitively diagnose gluten > sensitivity. I read the post from the person who has realized an > improvement in just 4 days & I would certainly say that in her case. the > proof is in the pudding! As for me, I've been working with the GF diet > now for about 3 weeks & I cannot honestly say I feel any different that > I did before I began. Except that I have the flu & feel like hell from > that! It is not that I want to feel free to indulge in cakes & pies & > candies & all of that because I never did eat like that. I don't mind > going on a diet that severely restricts what I eat when I know that it > is necessary. When I had Cdiff, I ate a much more restricted diet than > the GF diet for 5 months but I was very was very sick & had no choice. > This time I wasn't sick when I began a new diet. At least I didn't feel > sick. I guess as someone has said, I can go back to the " old ways " & see > how I feel eating gluten again. But this is not a matter of simply > rebelling again not being able to " eat what I like. " I am just one of > those people who'd like the figures laid out in front of me. > > Pam > . > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2009 Report Share Posted October 26, 2009 Shannon, I live alone so no problem there. As to my " recovery " , I wasn't really sick before that I know of. I have some problems - anxiety a big one - & osteopenia bordering on osteoporosis, but I didn't FEEL sick. And yes, I do know that anxiety & osteoporosis can be connected to gluten. This whole experiment with gluten free is the idea of a holistic adviser who recommended I do this to improve my health. Shannon West wrote: > > How careful are you being about being gluten free? Do you share a > toaster or a tub of margarine or a jar of jam or peanut butter with > someone who eats gluten? Do you use wooden spoons that you used > pre-gluten free? All of those things would interfere with your > recovery if you are gluten-intolerant. > > Shannon > > ----- Receiving the following content ----- > Pam Norman > Receiver: Vegan-and-Gluten- Free > Time: 2009-10-25, 16:23:40 > Re: [Vegan-and-Gluten- Free] Gluten antibody testing > > > > > >It is not the way I feel & I didn't mean to convey that. I would simply > >like to know if there is a way to definitively diagnose gluten > >sensitivity. I read the post from the person who has realized an > >improvement in just 4 days & I would certainly say that in her case. the > >proof is in the pudding! As for me, I've been working with the GF diet > >now for about 3 weeks & I cannot honestly say I feel any different that > >I did before I began. Except that I have the flu & feel like hell from > >that! It is not that I want to feel free to indulge in cakes & pies & > >candies & all of that because I never did eat like that. I don't mind > >going on a diet that severely restricts what I eat when I know that it > >is necessary. When I had Cdiff, I ate a much more restricted diet than > >the GF diet for 5 months but I was very was very sick & had no choice. > >This time I wasn't sick when I began a new diet. At least I didn't feel > >sick. I guess as someone has said, I can go back to the " old ways " & see > >how I feel eating gluten again. But this is not a matter of simply > >rebelling again not being able to " eat what I like. " I am just one of > >those people who'd like the figures laid out in front of me. > > > >Pam > > > > > >Deborah Pageau wrote: > >> > >> > >> Well said Jae. > >> > >> There are those who would rather eat what they like no matter how > >> detrimental it is to their health. If that's the way you feel, there's > >> really nothing anyone can say to help you. > >> . > >> > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2009 Report Share Posted November 1, 2009 This is my question too. I dont see any point in being tested for celiac. I dont see any point in being tested to see if I have the genes. I believe I am gluten intolerant, not celiac. From what I have read there is a definete difference. Or am I wrong on that? Kandi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2009 Report Share Posted November 1, 2009 It's all just pieces from the same puzzle. It all boils down to the same thing: if a person is gluten intolerant, we assume you have the gene for gluten intolerance. Celiac is just one of the many possible symptoms. Bottom line is the same: the need to avoid eating gluten. Deborah This is my question too. I dont see any point in being tested for celiac. I dont see any point in being tested to see if I have the genes. I believe I am gluten intolerant, not celiac. From what I have read there is a definete difference. Or am I wrong on that? Kandi . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2009 Report Share Posted November 1, 2009 I had A gene for gluten intolerance but not THE most typical genes for celiac disease. Personally, I consider celiac to be a subgroup within the general area of gluten intolerance. People with typical celiac have certain genes, have certain body clues, have definitive diagnosis tools that many doctors believe in, etc. Those of us with a broader definition of gluten intolerance may have more difficulty having a doctor recognize it if we don't fit typical celiac. Sally On Sun, Nov 1, 2009 at 6:21 PM, Deborah Pageau <dpageau wrote: > > > It's all just pieces from the same puzzle. > > It all boils down to the same thing: if a person is gluten intolerant, we > assume you have the gene for gluten intolerance. Celiac is just one of the > many possible symptoms. Bottom line is the same: the need to avoid eating > gluten. > > Deborah > > This is my question too. I dont see any point in being tested for celiac. I > dont see any point in being tested to see if I have the genes. I believe I > am gluten intolerant, not celiac. From what I have read there is a definete > difference. Or am I wrong on that? > > Kandi > . > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2009 Report Share Posted November 2, 2009 I assumed from the start that I was gluten intolerant but not actually celiac. But as I have learned more and more about celiac and some of the symptoms that I didn't previously know about, and as my dad has gone gluten free and we have started to sort out our personal and family history of symtomology, I have come to the conclusion that I am probably celiac. What difference has that made to me? I have been far more careful about things like only using certified gluten free oats, being more careful of cross-contamination, etc. And I believe that it has made a further improvement in my health to be more strict about these things. Pam On Sun, Nov 1, 2009 at 12:48 PM, iowa_classic <iowa_classicwrote: > > > This is my question too. I dont see any point in being tested for celiac. I > dont see any point in being tested to see if I have the genes. I believe I > am gluten intolerant, not celiac. From what I have read there is a definete > difference. Or am I wrong on that? > > Kandi > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2009 Report Share Posted November 2, 2009 I agree. Although eating a low-gluten diet definitely helped, making the effort to eat 100% gluten free helped me achieve improvement beyond my expectations. :-) Deborah I assumed from the start that I was gluten intolerant but not actually celiac. But as I have learned more and more about celiac and some of the symptoms that I didn't previously know about, and as my dad has gone gluten free and we have started to sort out our personal and family history of symtomology, I have come to the conclusion that I am probably celiac. What difference has that made to me? I have been far more careful about things like only using certified gluten free oats, being more careful of cross-contamination, etc. And I believe that it has made a further improvement in my health to be more strict about these things. Pam . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2009 Report Share Posted November 2, 2009 Ok, so there is a gene for gluten intolerance? I was told there was not, that testing would only show celiac, but not neccesarally if you were gluten intolerant. I am trying to do the gluten intolerant diet, so it isnt a question of what I should eat or not eat. I didnt think that gluten intolerance would show up in a test so I have never had it done. Kandi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2009 Report Share Posted November 2, 2009 You can find more info about genes that indicate a likelihood of gluten intolerance at www.enterolab.com. Sally On Mon, Nov 2, 2009 at 12:31 PM, iowa_classic <iowa_classicwrote: > > > > Ok, so there is a gene for gluten intolerance? I was told there was not, > that testing would only show celiac, but not neccesarally if you were gluten > intolerant. > > I am trying to do the gluten intolerant diet, so it isnt a question of what > I should eat or not eat. I didnt think that gluten intolerance would show up > in a test so I have never had it done. > > Kandi > > > -- " If you want to write fiction, the best thing you can do is take two aspirins, lie down in a dark room, and wait for the feeling to pass. If it persists, you probably ought to write a novel. " —Lawrence Block, Writing the Novel From Plot to Print Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2009 Report Share Posted November 2, 2009 https://www.enterolab.com/StaticPages/Frame_Faq.htm Ok, so there is a gene for gluten intolerance? I was told there was not, that testing would only show celiac, but not neccesarally if you were gluten intolerant. I am trying to do the gluten intolerant diet, so it isnt a question of what I should eat or not eat. I didnt think that gluten intolerance would show up in a test so I have never had it done. Kandi . Quote Link to comment Share on other sites More sharing options...
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