OT: Finally have a plan (warning, long)

January 19, 2007

Called Dr. S office in tears today, cannot get out of bed, cannot take care of

myself, sometimes too exhausted to feed myself. I spoke with his nurse

practitioner (God Bless her) and she soothed me, reminded me that this is going

to take a lot of recovery and that Dr. S is going to send me to physical

therapy after all the other docs have signed off, including if I need surgery

to fix what is going on in my abdomen. (Will see the gut doctor then decide if

I am going to Emory or Mayo.) Then she started going over my meds, am I still

taking the hyoscyamine for gut spasms, Potassium (out of that), Mag-ox for

whatever, (out of that too), Cipro for infection (out of that) Flagyl for

infection (ditto) darvocet for pain, ambien to sleep, Zoloft for depression,

phenergan for puking, 2 multivitamins daily, calcium (out of that), Pepcid for

gut, quinine for cramping and Provigil for FIBROMYALGIA.

Huh? I have Fibromyalgia? Evidently NOT something Dr. B remembered to

TELL me when he was still my doc at the Other practice. I told her I was out of

Provigil and haven’t had it for several months and she said, “Oh Miss Jeanne,

no wonder you are feeling so terrible. I have a couple weeks worth of samples

you can have and I’ll get Dr. S to write you a script for them today.” I told

her of the hell we had to go through to get Caremark to even let me have the

Provigil before and she assured me that they won’t give Dr. S ANY trouble

getting it approved. Knowing my adored Dr. S and his nurse practitioner, I

believe her. She looked over my labs and was not happy with the way low

hematocrit. Since Dr.S was not the admitting doc (the one I went to uses

hospitalists and I was lucky enough to get my dear Dr B), and the gut doc and

Dr. B were more concerned with the pancreatitis, diverticulitis, epigastritis,

the huge abdominal hernia, the problematic area in the

ileac cecum, the looooow hemoglobin just kind of went by the wayside. (Or down

the toilet since I was passing a gallon…they measured…of bile and blood daily

for the first two weeks there.) So his nurse said up the tender iron to 4 at

each meal, increase the PROTEIN shakes to 6 a day, even if all I can get in my

body is the protein, orange juice and pills and to hold on till I get in there

because she wants a huge blood panel done before adding anything else. I will

also be going to a hematologist. She was hot hot hot under the collar. I

could hear Dr. S in the background getting REALLY pissed as he read over her

shoulder at the hospital notes. (They were about as long as War and Peace). I

heard him say that they had no business releasing me so soon and they are not

doing that to one of HIS patients again. Hehehe.

Re the diabetes: Yes, there is a good possibility that the pancreatitis has

pushed me over from hypoglycemic to hyperglycemic. I am to do the diabetic

vegetarian diet (with protein shakes) and continue with the orange juice

because my electrolytes are screwed to hell and back. If the oj causes a bad

spike, I am to use sf tang but they feel since my body is screaming for oj, it

knows something that we don’t. Since the debacle at the hospital when they gave

me an insulin injection because it was 174 and then I started puking and didn’t

eat and went into hypoglycemic shock only to be found unconscious half on the

floor and half in the bed 4 hours later at shift change Dr. S says if I need to

go on ANY insulin (oral or needle) it is going to be done IN the hospital and

closely monitored.

I am NOT to do anything other than to the bathroom or kitchen for protein and

juice. I am NOT to shower without Carl IN the room. I am NOT to pick up so

much as a dropped Kleenex. I can sit up as tolerated but no longer than half

to a whole hour at a time. Nurse said (actually doctor said it, I could hear

him firing off directions in the background) that we’d address the loss of

muscle mass and getting me in rehab once we got me to where I COULD do it and

if I could not be compliant, it would be back to the hospital for me. They are

going to look into home health care aide for me (if insurance covers it, which

it doesn’t). I can do a little of my beloved Tai Chi IN bed or chair as

tolerated. (Back to wheelchair again, but I got out of it once before and WILL

do so again.) (Oh heck, I gave it away.) Oh well.

She got the websites for Vitalady and Dr. Fobi and Dr. Oh (what a relief to

have a doctor who is a teckie and not a technophobe) and said we’ll be

discussing adding/changing things after they have had time to read everything.

I am to call Dr. S for ANY problem. If it is hospital type problem, (in other

words, unconscious or passing gallons of stuff again), I am to go immediately

to the hospital. Both hospital ER’s have orders to admit me if I come in.

Time for nap but emotionally a LOT better than before. Love to all, Jeanne in

GA

Bored stiff? Loosen up...

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January 19, 2007

You poor dear. I'm so sorry this is all cascading down on your at once. I'm

glad you were able to get them to both talk with you and look over your chart.

Keep us updated and know I am praying for you.

Judy

-

treazure noname

; Graduate-OSSG

Friday, January 19, 2007 12:37 PM

OT: Finally have a plan (warning, long)

Called Dr. S office in tears today, cannot get out of bed, cannot take care of

myself, sometimes too exhausted to feed myself. I spoke with his nurse

practitioner (God Bless her) and she soothed me, reminded me that this is going

to take a lot of recovery and that Dr. S is going to send me to physical therapy

after all the other docs have signed off, including if I need surgery to fix

what is going on in my abdomen. (Will see the gut doctor then decide if I am

going to Emory or Mayo.) Then she started going over my meds, am I still taking

the hyoscyamine for gut spasms, Potassium (out of that), Mag-ox for whatever,

(out of that too), Cipro for infection (out of that) Flagyl for infection

(ditto) darvocet for pain, ambien to sleep, Zoloft for depression, phenergan for

puking, 2 multivitamins daily, calcium (out of that), Pepcid for gut, quinine

for cramping and Provigil for FIBROMYALGIA.

Huh? I have Fibromyalgia? Evidently NOT something Dr. B remembered to TELL me

when he was still my doc at the Other practice. I told her I was out of Provigil

and haven't had it for several months and she said, " Oh Miss Jeanne, no wonder

you are feeling so terrible. I have a couple weeks worth of samples you can have

and I'll get Dr. S to write you a script for them today. " I told her of the hell

we had to go through to get Caremark to even let me have the Provigil before and

she assured me that they won't give Dr. S ANY trouble getting it approved.

Knowing my adored Dr. S and his nurse practitioner, I believe her. She looked

over my labs and was not happy with the way low hematocrit. Since Dr.S was not

the admitting doc (the one I went to uses hospitalists and I was lucky enough to

get my dear Dr B), and the gut doc and Dr. B were more concerned with the

pancreatitis, diverticulitis, epigastritis, the huge abdominal hernia, the

problematic area in the

ileac cecum, the looooow hemoglobin just kind of went by the wayside. (Or down

the toilet since I was passing a gallon.they measured.of bile and blood daily

for the first two weeks there.) So his nurse said up the tender iron to 4 at

each meal, increase the PROTEIN shakes to 6 a day, even if all I can get in my

body is the protein, orange juice and pills and to hold on till I get in there

because she wants a huge blood panel done before adding anything else. I will

also be going to a hematologist. She was hot hot hot under the collar. I could

hear Dr. S in the background getting REALLY pissed as he read over her shoulder

at the hospital notes. (They were about as long as War and Peace). I heard him

say that they had no business releasing me so soon and they are not doing that

to one of HIS patients again. Hehehe.

Re the diabetes: Yes, there is a good possibility that the pancreatitis has

pushed me over from hypoglycemic to hyperglycemic. I am to do the diabetic

vegetarian diet (with protein shakes) and continue with the orange juice because

my electrolytes are screwed to hell and back. If the oj causes a bad spike, I am

to use sf tang but they feel since my body is screaming for oj, it knows

something that we don't. Since the debacle at the hospital when they gave me an

insulin injection because it was 174 and then I started puking and didn't eat

and went into hypoglycemic shock only to be found unconscious half on the floor

and half in the bed 4 hours later at shift change Dr. S says if I need to go on

ANY insulin (oral or needle) it is going to be done IN the hospital and closely

monitored.

I am NOT to do anything other than to the bathroom or kitchen for protein and

juice. I am NOT to shower without Carl IN the room. I am NOT to pick up so much

as a dropped Kleenex. I can sit up as tolerated but no longer than half to a

whole hour at a time. Nurse said (actually doctor said it, I could hear him

firing off directions in the background) that we'd address the loss of muscle

mass and getting me in rehab once we got me to where I COULD do it and if I

could not be compliant, it would be back to the hospital for me. They are going

to look into home health care aide for me (if insurance covers it, which it

doesn't). I can do a little of my beloved Tai Chi IN bed or chair as tolerated.

(Back to wheelchair again, but I got out of it once before and WILL do so

again.) (Oh heck, I gave it away.) Oh well.

She got the websites for Vitalady and Dr. Fobi and Dr. Oh (what a relief to

have a doctor who is a teckie and not a technophobe) and said we'll be

discussing adding/changing things after they have had time to read everything. I

am to call Dr. S for ANY problem. If it is hospital type problem, (in other

words, unconscious or passing gallons of stuff again), I am to go immediately to

the hospital. Both hospital ER's have orders to admit me if I come in.

Time for nap but emotionally a LOT better than before. Love to all, Jeanne in

GA

Bored stiff? Loosen up...

Download and play hundreds of games for free on Games.

January 19, 2007

holyholyholyholysamolies. may God or whoever give you the strength you need to

get through this. I haven't posted re: all you've gone through until now but

you've been in my prayers. I am absolutely shocked & in awe of what is

happening to you. Hang tough hunny & don't push yourself. xo Bethie

treazure noname <treazured wrote: Called Dr. S office in

tears today, cannot get out of bed, cannot take care of myself, sometimes too

exhausted to feed myself. I spoke with his nurse practitioner (God Bless her)

and she soothed me, reminded me that this is going to take a lot of recovery and

that Dr. S is going to send me to physical therapy after all the other docs have

signed off, including if I need surgery to fix what is going on in my abdomen.

(Will see the gut doctor then decide if I am going to Emory or Mayo.) Then she

started going over my meds, am I still taking the hyoscyamine for gut spasms,

Potassium (out of that), Mag-ox for whatever, (out of that too), Cipro for

infection (out of that) Flagyl for infection (ditto) darvocet for pain, ambien

to sleep, Zoloft for depression, phenergan for puking, 2 multivitamins daily,

calcium (out of that), Pepcid for gut, quinine for cramping and Provigil for

FIBROMYALGIA.

Huh? I have Fibromyalgia? Evidently NOT something Dr. B remembered to TELL me

when he was still my doc at the Other practice. I told her I was out of Provigil

and haven’t had it for several months and she said, “Oh Miss Jeanne, no wonder

you are feeling so terrible. I have a couple weeks worth of samples you can have

and I’ll get Dr. S to write you a script for them today.” I told her of the hell

we had to go through to get Caremark to even let me have the Provigil before and

she assured me that they won’t give Dr. S ANY trouble getting it approved.