Guest guest Posted February 16, 2003 Report Share Posted February 16, 2003 My sister and I both suspect that we have Celiac disease. Our original symptoms included fatigue, depression, anxiety, etc, We went on a gluten free diet at the same time. My mom immediately felt significantly better. I, on the other hand, feel worse and I have been on the diet for 2 weeks. Could this be die off similar to yeast or is this in indication that I might not be gluten sensitive? I am going to try to have the blood test done but I won't be able to do that for several months. I appreciate any advice that anyone could give me. Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2003 Report Share Posted February 17, 2003 rubygirl583 <rubygirl58 >I, on the other hand, feel worse and I have >been on the diet for 2 weeks. Well, I guess it could be a " cleansing reaction " I guess.... when toxins that have been stored in the body start exiting in the initial period after an improvement has been made. Did you feel better initially, and then worse again? Another option is that you may ALSO be sensitive to some other foods that you have been eating more of since going off gluten. Deborah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2003 Report Share Posted February 17, 2003 Hi, At 06:44 PM 2/16/03 +0000, you wrote: >My sister and I both suspect that we have Celiac disease. Our >original symptoms included fatigue, depression, anxiety, etc, Sounds familiar. > We went >on a gluten free diet at the same time. My mom immediately felt >significantly better. I, on the other hand, feel worse and I have >been on the diet for 2 weeks. Could this be die off similar to yeast >or is this in indication that I might not be gluten sensitive? An emphatic yes from me. My girls seemed to feel immediately better. I, OTOH, felt terrible for quite some time. In fact, I considered going back on an anti-depressant. Sometime later, I felt better though. > I am >going to try to have the blood test done but I won't be able to do >that for several months. I appreciate any advice that anyone could >give me. Thanks. You need to be on gluten in order for the blood test to be accurate. Some question the validity of how long you need to be on gluten for the blood test to be accurate. I know that I was gluten free for one week (we didn't eat a lot of gluten, but enough), went back and loaded on gluten for a week and then was tested. Negative. I was so disappointed. I also had testing done by http://www.enterolab.com. I got the $99 test done for our entire family (except for the baby). It's not entirely necessary to be on gluten for this test to come back as positive. If funds are tight, this might be a better option. I have no financial interest in enterolab, but have been very pleased with the service that I have received from this lab. You're doing fine, but it doesn't always feel like it. If you really believe that going gf will help, try it for a couple of months. You may find that the depression will lift after a time. Susie momma to Sarah Rose (May 9, 1995), Emily (April 8, 1998) and Anna (March 15, 2001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2003 Report Share Posted February 17, 2003 rubygirl583 <rubygirl58 >Could this be die off similar to yeast >or is this in indication that I might not be gluten sensitive? I already responded once, but I just had some more thoughts on this issue. I think feeling worse is really confirmation that you are in fact gluten-sensitive, because if you weren't gluten-sensitive, you would experience NO change by giving it up... neither better nor worse. As you already understand about the " die off " (I called it a " cleasning reaction " ) in my previous response... I will just say further to that, that gluten has an addictive effect in people who are sensitive to it. When gluten is improperly digested, a gluten-based opioid is formed, which as the word implies, has opiate-like activities. The opioid may have a negative influence on mental acuity, and may also be a factor in forming addictive relationships to these foods. (Am J Clin Nutr 1995 Jun;61(6):1206-12) So, you may be feeling worse because of being in " withdrawal " from this gluten-based opioiod. Deborah Quote Link to comment Share on other sites More sharing options...
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