Questions to those who have been gf many years

[Guest guest]

Hi LuLu;

 

Here are some websites with stories from people who have beaten Lupus:

 

http://www.drmcdougall.com/stars/star03.html

 

http://www.drmcdougall.com/stars/vanessa.html

 

http://www.drmcdougall.com/stars/mayra.html

 

Low-fat vegan diet was the key for these folks. Good luck!

 

Deborah

 

 

 

 

 

[Guest guest]

Hi Lulu -

 

Here's a very good resource for you::

 

http://brain.hastypastry.net/forums/forumdisplay.php?forumid=141

 

Lots and lots of info and sound advice there.

 

~Karina

 

" Be here now. Be someplace else later. Is that so complicated? "

 

 

 

 

 

[Guest guest]

I would urge you, as a long time autoimmune sufferer, to check out

www.drfuhrman.com It was through his guidance I'm 99% from a full

recovery. Each day I'm better and better. The key is to detox and get

loads and loads of phytochemicals into your system. Just going on a low fat

vegan diet helps a few but for most of us, it's not enough.

 

Good luck and email me if you need more assitance.

 

Shelly

On Behalf Of LuLu

Monday, August 22, 2005 2:01 PM

Questions to those who have been gf many

years

 

 

Hi there,

I was browsing a message board at celiac.com the other evening and read so

many things posted by people who have been gf for many years but seem to

still have many health issues which had me a bit puzzled.

Let me explain a bit. I became seriously ill in my mid to late twenties

and was diagnosed with Lupus and having been extremely healthy prior to this

I didn't know what to make of it and thought for sure it had to be from the

Premarin I was prescribed for early menopause due to total hyster. I

doctored many years and was told absolutely not was it from the premarin

despite the fact that I had a rash covering my legs and underarms. To make

a long story short I started a totally healthy organic chem free life and

was able to improve my health over the course of the next ten years but not

enough to ever get completely well. By the time I figured out the premarin

had induced the lupus I felt my system was in a pretty rough state and it

took about 5 years off the premarin to be lupus free completely but I still

remained sick and was then diagnosed with extremely low antibody count, IgA

and IgG. I was introduced then to Immunoglobulin IV therapy and had this

every three weeks for 4 months. I got desperately ill from this and

discontinued the treatments. It is not very common to get more ill, it is

suppose to greatly improve the strength of the immune system but I did not

experience that but worsening and my antibodies plummeted even further. I

have a history of chronic bronchitis, sinus congestion and lymph congestion

along with frequent bouts of bacterial infections in my respiratory tract.

Antibiotics also make me sicker so I try to avoid them and self treat with

hydrogen peroxide in my ears and sinuses and eating many cloves of raw

garlic daily. A few months ago I stumbled upon some information in regards

to celiac that made sense to me especially the info I found on IgA that

said when low it is normally due to either 1) born with, which was not the

case 2) luekemia which is not the case either as I have too much bloodwork

to rule all this out, or 3) celiac. It was the first time I had found a

thing regarding IgA even though I had found plenty on IgG.

I felt I had finally found what the root could be. All these years of all

the foods I had cut out of my diet I never once considered gluten a

possibility nor did I know the extent of the damage one's could get from

many years of this. My stomach was a constant mess and when I would get my

worst I would eat like a horse but lose massive weight but when I felt well

my weight would start to regulate back to normal and reviewing my history

it was when I would go to a strictly fresh produce and rice diet that I

would feel well but I never made the connection as I figured it was just a

good fast for the body. So that got me to thinking and I called my

immnologist even though I had started the GF diet I thought to ask him about

this as being possible. He wants me to go in for more testing but now I see

that one has to be on gluten for a few months before those tests show up. I

am wondering if it is at all possible that the current bloodwork I have if

it shows improvement say in four months which will put me at 6 months for

GF, if that would be enough to diagnose it. I am not so concerned with a

typical diagnosis because with my history I have so many things go wrong

from osteoporsis at a young age to severe fatigue etc., however, what I am

concerned with is that the doc's and hospitals are aware of this in the

event I have to go in for any reason. I am without a doubt convinced it is

the gluten destroying my body because since going GF my weight has gone back

to normal and I am not malnourished and starving constantly.

For those of you who have been GF many years do you still have health

issues or do you feel fairly healthy? Is it normal for celiacs to not feel

completely well? If one eats well and balanced should the health be much

improved once the body is able to heal from the damage? Is it possible for

the body to heal from extensive damage especially from being chronically

congested (like infected glue in my body, gluten? LOL) ?

Sorry for this being so long. I hope there is someone who can give me

some insight to some of the questions I have.

Thanks so much!

Luv

LuLu