Celiacs

September 6, 2005

Lena

as long as the person is willing to work to make sure he gets his fibre, there

is nothing wrong with a gluten free diet. It is entirely possible, as we know

ourselves, to get grains which are not gluten ones. If one looks at the blood

type diets, at least the A blood type suggests no wheat, rye or barley, so that

looks alot like a gf diet already.

Many people who try a GF diet, seem to feel better without the wheat anyway.

It's really only in the 1st world countries that wheat is used so much, and then

again, only in the last 150 years. In the scriptures we see that the people ate

barley bread more than wheat, as barley is a cheaper grain and easier to grow,

but of course, it still has trace glutens.

And, if there are family members in the household with someone who has Celiac's

or non CD gluten intolerance, it is always helpful for the family to support the

person in their diet just for the effect of moral support. It's pretty hard for

a person with CD to always have to watch the people across the table from them

eating gluten heavy meals, and for a really sensitive CD it's still going to be

possible to get gluten if it's cooked in the house so ...

all in all, it won't hurt your friend a bit and will, possibly, have some great

side benefits.

BL

Hi everyone, one of my friend hava a question sound like a bit " silly " but I

sincerely hope to hear from all of you!

How about someone who are not a celiac or gluten intolereance take up gluten

free & wheat free diet! Will that healthy for " him " ?

Look forward to hear from everyone, thks! Lena

September 6, 2005

My husband is not gluten intolerant; I am the celiac

in the family; but when I went gluten-free, so did he

in support of me.

We've both been gluten-free for almost four years. My

health improved so dramatically by going GF it was a

minor miracle. My husband also feels he has benefited.

He is able to maintain a lower healthier weight

without effort. For some reason wheat seemed to keep

an extra few *extra* pounds on him. So he actually

feels MUCH better GF. Though he doesn't have to be -

he chooses to be.

Historically, many cultures have not relied on

wheat/gluten grains - many Asian and Native American

and Indian cultures featured gluten-free grains such

as rice, sorghum or corn; or buckwheat (not a grain

but a fruit technically).

Hope that helps.

Karina

" Be here now. Be someplace else later. Is that so complicated? "

September 6, 2005

LuLu

Is your household gluten free? And have you looked to your personal care

products like shampoo and toothpaste for gluten.

Those questions asked, it took about 3 months of completely gf for my daughter

to be well again, and a simple exposure like wheat in the shampoo set her back

for weeks. The environment has to be checked as well during the recovery stage

and if someone else in your house is still eating gluten, you could be inhaling

the gluten particles or accidentally have it on your hands and still make

yourself sick.

It has been my experience that in the first few months, people with CD often

find, as they heal, that they have intolerances or allergies to other foods as

well as gluten and that their recovery depends on the removal of these foods as

well. For most of them, their intolerance to these foods goes when the gut is

totally healed, but until it is, other foods made also be problematic - like

soy, nuts, certain fish, dairy, corn, etc.

BL

September 6, 2005

LuLu-

It sounds more like your body may be detoxing. Which is very normal. My

husband has been gluten free for 9 months, and is not completely healthy yet.

His DH has only minorly cleared.

My son was GF for two years before he was " normally healthy " it really depends

on how much damage, the length of the having Celiac and eating gluten.

Are you taking some good digestive emzymes? That really helps.

Amy

September 6, 2005

LuLu,

I saw some obvious improvements immediately,

especially regarding my daily reaction to food. It

took much longer to heal the malabsorption, and

vitamin depletion, and fatigue.

I seemed to hit a healing plateau at about 6 months

GF, then jumped up in energy at 12 months; two years

GF brought another level of healing, and the third

anniversary, even another. I continue to improve. It

takes time.

In the first few weeks I definitely think it's easy to

get glutenized by hidden sources. For instance, Rice

Dream has hidden barley.

Others:: An envelope licked by mistake, an old

lipstick, a hand lotion, an herbal tea not checked -

there are many ways we can gluten ourselves. Old

wooden spoons and wooden cutting boards. An old wok. A

non-stick pan used for making a flour-based sauce

once.

I find that when my son comes home for a visit I get

sick at least once - and he barely brings gluten into

the house (he's very respectful of my sensitivity and

will eat his pizza or sub sandwich sitting out on the

deck - but - I will still get glutened somehow). We

determined it can spread from the oil on the

pizzas/subs; his glutened hands touch the fridge

handle, cupboards, milk carton, etc.; then I touch it

and eat something...

So - now I wipe down all the surfaces and handles and

cartons etc. in the kitchen with antibacterial wipes

every day and I haven't gotten glutened again.

The other source may be shared condiments - margarine,

mayo, mustard, etc...?

Eating out is the most common way people get glutened

- even if you order a salad, it may have had bread

crumbs or croutons in it, etc...And a woman I know ate

lobster salad off of a roll for her GF lunch. That is

definitely not 100% gluten-free.

And then there is::

After struggling so much with our digestion, and

trying to heal, we often find odd foods that seem to

trigger an IBS-like reaction. For me it has been::

high fructose corn syrup and corn syrup. Next is soy,

soybean oil. Then onions. All these give my symptoms

(not because they contain gluten, but because they are

hard to digest).

Have you been taking a probiotic to help your

digestion balance the flora in tour body? Very

important. I take Culturelle daily.

And last - I know this is a vegan list (but I am not

vegan - I'm ovo-lacto-veggie) but do you have dairy?

Until you heal completely many celiacs have lactose

intolerance and cannot digest milk sugar. I was once

very lactose intolerant; now I am only a little. I

tolerate cheeses very well.

If you are not feeling better by now, in general, I

might speak with your doctor and go over other

possibilities (after I checked and double-checked all

my other possible culprits).

Karina

" Be here now. Be someplace else later. Is that so complicated? "

____

Click here to donate to the Hurricane Katrina relief effort.

http://store./redcross-donate3/

September 7, 2005

My partner went GF to support me and has really benefitted. She had problems

with very dry, rashy skin on her feet and hands and it cleared up and has not

come back. She had it for years.

You never know what benefits will come of it.

Lena W <lenapeace2008 wrote:

Hi everyone, one of my friend hava a question sound like a bit " silly " but I

sincerely hope to hear from all of you!

How about someone who are not a celiac or gluten intolereance take up gluten

free & wheat free diet! Will that healthy for " him " ?

Look forward to hear from everyone, thks! Lena

Brenda-Lee Olson <shalomaleichemacadem wrote:

I think this is subjective. The only real benefit of having the blood test or

the biopsy is to prove to the medical community that you would be better off

without gluten in your life. Since Shoshana was trying to get her husband to

agree it makes sense to follow through with these tests, but for the average

person who gets sick on gluten, staying on it to endure a biopsy which may or

may not prove you meet the gold standard of diagnosis serves little purpose when

the treatment is to remove all gluten from your diet anyway.

My PCP, who happens to be trainined in environmental medicine told us try the

diet and if we felt better that was proof enough of a gluten intolerance

regardless of whether it was CD or not. He said it's like going to the doctor

and saying it hurts when I do this, and having the wise old country doctor say

" well, don't do that "

Just my 2 cents though,

BL

The blood test is simple, have your PCP or

pediatrician run the test (but don't stop eating gluten until you get this

done. If positive, you'll need a biopsy (and have to stay on gluten until

that is finished).

September 7, 2005

Hi Brenda,

No my house is not gluten free. My husband does eat out alot but he does have

lots of gluten around here. I have been very careful around any gluten foods

but I can see that I could get it on my hands when cleaning up for sure. I have

gotten rid of all gluten personal products as well and have been careful about

anything I use on my body but my husband uses the same products he always has

used and I'm not sure about Irish Spring soap and Suave haircare, he has always

been opposed to my natural organic products I use but being we use the same

shower I would imagine I could be getting contaminated in there? I have to find

out if his products are gf and most of what I was already using on my body were

gf much to my surprise but after random products over the years I found those

that I didn't react to and come to find out they had gf in them. LOL.

Thanks for sharing and I will certainly look forward to more improvement as time

goes on. My doc asked me if I tapered off it and I didn't, I just cut it all

out completely one day and didn't look back. I think he was trying to tell me I

was having a withdrawal reaction which maybe is true too.

Thanks again. = )

Luv

LuLu

-

Brenda-Lee Olson

Tuesday, September 06, 2005 1:00 PM

Re: Celiacs

LuLu

Is your household gluten free? And have you looked to your personal care

products like shampoo and toothpaste for gluten.

Those questions asked, it took about 3 months of completely gf for my daughter

to be well again, and a simple exposure like wheat in the shampoo set her back

for weeks. The environment has to be checked as well during the recovery stage

and if someone else in your house is still eating gluten, you could be inhaling

the gluten particles or accidentally have it on your hands and still make

yourself sick.

It has been my experience that in the first few months, people with CD often

find, as they heal, that they have intolerances or allergies to other foods as

well as gluten and that their recovery depends on the removal of these foods as

well. For most of them, their intolerance to these foods goes when the gut is

totally healed, but until it is, other foods made also be problematic - like

soy, nuts, certain fish, dairy, corn, etc.

BL

September 7, 2005

Hi Amy,

I don't have enzymes, do you know of a gf one that is safe?

Thanks for sharing this because I feel like my body is detoxing. I would

imagine the extent of damage to my body is pretty severe because it has been so

ill for so many years and since going gf I have had many more good days than not

good for certain and it doesn't seem random to me, it seems like small things

that were chronic flare up really bad for about four days and then go away

completely like for the first time in 15 years my sinuses are not congested and

that is a major milestone for me. I'm so thankful for everyone sharing their

experiences as it helps keep me on the right track and not to get discouraged

but keep moving forward onto good health.

Thanks so much! = )

Luv

LuLu

-

Amy Lovelace

Tuesday, September 06, 2005 1:16 PM

Re: Celiacs

LuLu-

It sounds more like your body may be detoxing. Which is very normal. My

husband has been gluten free for 9 months, and is not completely healthy yet.

His DH has only minorly cleared.

My son was GF for two years before he was " normally healthy " it really depends

on how much damage, the length of the having Celiac and eating gluten.

Are you taking some good digestive emzymes? That really helps.

Amy

September 7, 2005

Thank you Karina for explaining all of this...gosh I didn't think of the hands

and oils getting on say the refridgerator handles etc. I don't eat out normally

and I am so paranoid of getting gluten that until I become more familiar and

comfortable with products pre made that are gf I have chosen to stay away from

them and have made most of my meals from scratch or I just grab an apple and

water.

Yes Karina, I have osteo so I have been trying to drink milk a few times a

week...I normally don't drink milk because my stomach goes into a funk from it

and I do okay with cheese on occassion but mostly I do best with yogurt, cottage

cheese and kefir so that is my main source for dairy. I also eat seaweed, kelp,

for the osteo and that has been very helpful/beneficial with the osteo but one

can only eat so much seaweed...lol.

I am going to cut out the few glasses of milk a week until this improves, that

is a great suggestion. I was drinking raw milk earlier this year and had no

problems but it is so extremely expensive and my husband won't drink it and I

can't drink a whole gallon a week so I quit buying it...it's too bad it doesn't

come in smaller containers because it was so wonderful to my stomach.

I'm not completely vegan because my body needs protein from a meat source at

least once every two weeks regardless of what I have been eating or supplements

I took in. I get very weak without the meat and I would presume it is due to

the malabsorption problem so I am hoping eventually to cut it out. The mainstay

of my diet has been fresh produce, water, millet and rice...lol. I cannot

tolerate orange juice, corn, black beans, tomatoes and potatoes and that has

been for many years and going GF has not changed that.

Someone sent in a link to a specific diet " Breaking the Vicious Cycle " and I

ordered the book because I am thinking it may be a good idea until I get healed

up to follow it until I feel more healed than I do now. My poor stomach has

been in such a funk that even steamed veggies were bowling me over but maybe it

is accidental glutening and so I will be prepared to be a little bossy until I

get this through my families noggins..LOL..my kids have kids of their own and

the little ones roam and touch everything and hug and kiss me whilst eating

cookies and donuts etc...gosh this will be a huge transisiton but very important

I am finding out..LOL

Thanks for all this wonderful info as it really helps me understand more what to

be thinking about and looking at in the way of gf contamination and such.

LOL..my husband was using my computer one night whilst eating something with

gluten and I was so paranoid that I went and got a damp cloth and cleaned it off

but I never thought about the obvious, the kitchen...teeehehe..or my

grandbabies....= (

Luv

LuLu

-

Karina A. Allrich

Tuesday, September 06, 2005 1:17 PM

Re: Celiacs

LuLu,

I saw some obvious improvements immediately,

especially regarding my daily reaction to food. It

took much longer to heal the malabsorption, and

vitamin depletion, and fatigue.

I seemed to hit a healing plateau at about 6 months

GF, then jumped up in energy at 12 months; two years

GF brought another level of healing, and the third

anniversary, even another. I continue to improve. It

takes time.

In the first few weeks I definitely think it's easy to

get glutenized by hidden sources. For instance, Rice

Dream has hidden barley.

Others:: An envelope licked by mistake, an old

lipstick, a hand lotion, an herbal tea not checked -

there are many ways we can gluten ourselves. Old

wooden spoons and wooden cutting boards. An old wok. A

non-stick pan used for making a flour-based sauce

once.

I find that when my son comes home for a visit I get

sick at least once - and he barely brings gluten into

the house (he's very respectful of my sensitivity and

will eat his pizza or sub sandwich sitting out on the

deck - but - I will still get glutened somehow). We

determined it can spread from the oil on the

pizzas/subs; his glutened hands touch the fridge

handle, cupboards, milk carton, etc.; then I touch it

and eat something...

So - now I wipe down all the surfaces and handles and

cartons etc. in the kitchen with antibacterial wipes

every day and I haven't gotten glutened again.

The other source may be shared condiments - margarine,

mayo, mustard, etc...?

Eating out is the most common way people get glutened

- even if you order a salad, it may have had bread

crumbs or croutons in it, etc...And a woman I know ate

lobster salad off of a roll for her GF lunch. That is

definitely not 100% gluten-free.

And then there is::

After struggling so much with our digestion, and

trying to heal, we often find odd foods that seem to

trigger an IBS-like reaction. For me it has been::

high fructose corn syrup and corn syrup. Next is soy,

soybean oil. Then onions. All these give my symptoms

(not because they contain gluten, but because they are

hard to digest).

Have you been taking a probiotic to help your

digestion balance the flora in tour body? Very

important. I take Culturelle daily.

And last - I know this is a vegan list (but I am not

vegan - I'm ovo-lacto-veggie) but do you have dairy?

Until you heal completely many celiacs have lactose

intolerance and cannot digest milk sugar. I was once

very lactose intolerant; now I am only a little. I

tolerate cheeses very well.

If you are not feeling better by now, in general, I

might speak with your doctor and go over other

possibilities (after I checked and double-checked all

my other possible culprits).

Karina

" Be here now. Be someplace else later. Is that so complicated? "

____

Click here to donate to the Hurricane Katrina relief effort.

http://store./redcross-donate3/

Our vegan and gluten free recipes are available in the archives for this

group or at the following URL (***Recipes Posted to VGF***):

Check out these affiliated vegan lists ~

http://www.Christian-Vegan-Cooking

http://www.VintageVeganTea

http://www.VeganFoods4HealthyLiving

September 7, 2005

I thought of something else this morning after reading

LuLu's post.

Gluten is a protein and studies show that proteins

(they were studying allergens) when consumed remain in

the saliva for six to seven hours.

So sticky kids and kissing could definitely be a

possible source of hidden gluten.

Someone on a another list also mentioned pet food, and

dog licks; pet food often has gluten grains.

Frequent hand washing helps.

It's a jungle out there. ;-)

~Karina

" Be here now. Be someplace else later. Is that so complicated? "

____

Click here to donate to the Hurricane Katrina relief effort.

http://store./redcross-donate3/

September 7, 2005

I have taken to carrying the small bottles of alcohol based sanitizing gels for

this reason when I am in public. Touching money from others, eating out at

possibly contaminated tables, and life in general, just makes it sensible. Just

remember to care paper towel to wipe it off as well.

BL

September 7, 2005

If you carry the sanitizing wipes (they are individually packed) they get

you clean and were deemed sufficient to wipe off all traces of peanut butter

when testing methods of cleaning hands of allergens. The only thing that

failed the test was the sanitizing gels - they just smeared the allergen

around (although they did kill the bacteria on them).

>

> I have taken to carrying the small bottles of alcohol based

> sanitizing gels for this reason when I am in public. Touching

> money from others, eating out at possibly contaminated tables,

> and life in general, just makes it sensible. Just remember to

> care paper towel to wipe it off as well.

---

[This E-mail scanned for viruses by Declude Virus]

September 8, 2005

Watch out for furry grandbabies also - they are bad to scatter crumbs and

lick you after scarfding down a wheat based meal.

You can freeze the raw milk in freezer safe containers. Let it thaw in the

frig and shake to combine the separated components.

However, you are probably having a problem with lactose, so avoiding milk

completely will speed healing (the undigested lactose feeds bacteria further

down in the gut, causing inflammation and traditional gastric distress

symptoms).

You should stock up on gf snacks/treasts for the grandbabies (and try out a

gf cookie recipe or two - the pudding cookies recently posted are the ones I

would recommend). Then just put your food down and tell kids, grandkids and

husbands: grandma wants to be around to see you grow older, so no gluten

allowed in the house (and that isn't an exaggeration, not staying gf will

decrease your life expectancy).

When cleaning - don't forget to toss all old wooden spoons (gift them to

kids if scentimentally attached), cutting boards and teflon pans. Cast iron

can be kept - but must be taken down to bare metal and reseasoned (do we

really want to know what all lives in there besides old gravy?). This can be

done with a sandblaster, with the oven on self-clean (wash it well with hot

soapy water first) and sometimes with the dishwasher (wash and rinse only,

take it out before dry cycle, so it doesn't rust). One person reported

success with spray oven cleaner - spray to coat, put in a paper bag, close

up overnight, then wash with hot soapy water; repeat if necesary.

>

> Thanks for all this wonderful info as it really helps me

> understand more what to be thinking about and looking at in the

> way of gf contamination and such. LOL..my husband was using my

> computer one night whilst eating something with gluten and I was

> so paranoid that I went and got a damp cloth and cleaned it off

> but I never thought about the obvious, the kitchen...teeehehe..or

> my grandbabies....= (

---

[This E-mail scanned for viruses by Declude Virus]

September 8, 2005

Dear Brenda_Lee,

Thanks for your information. Lena

Brenda-Lee Olson <shalomaleichemacadem wrote:

Lena

as long as the person is willing to work to make sure he gets his fibre, there

is nothing wrong with a gluten free diet. It is entirely possible, as we know

ourselves, to get grains which are not gluten ones. If one looks at the blood

type diets, at least the A blood type suggests no wheat, rye or barley, so that

looks alot like a gf diet already.

Many people who try a GF diet, seem to feel better without the wheat anyway.

It's really only in the 1st world countries that wheat is used so much, and then

again, only in the last 150 years. In the scriptures we see that the people ate

barley bread more than wheat, as barley is a cheaper grain and easier to grow,

but of course, it still has trace glutens.

And, if there are family members in the household with someone who has Celiac's

or non CD gluten intolerance, it is always helpful for the family to support the

person in their diet just for the effect of moral support. It's pretty hard for

a person with CD to always have to watch the people across the table from them

eating gluten heavy meals, and for a really sensitive CD it's still going to be

possible to get gluten if it's cooked in the house so ...

all in all, it won't hurt your friend a bit and will, possibly, have some great

side benefits.

BL

Hi everyone, one of my friend hava a question sound like a bit " silly " but I

sincerely hope to hear from all of you!

How about someone who are not a celiac or gluten intolereance take up gluten

free & wheat free diet! Will that healthy for " him " ?

Look forward to hear from everyone, thks! Lena

September 8, 2005

Thanks!

Janet Nottley <janetnottley wrote:My partner went GF to support me

and has really benefitted. She had problems with very dry, rashy skin on her

feet and hands and it cleared up and has not come back. She had it for years.