Lori

[Guest guest]

Lori,

 

TY for the supportive letter. We have an appointment with Alessio Fasano,

MD, in Baltimore for my son. He is a leading pediatric researcher for celiacs

in the USA. The nurse told me that my son has to remain on gluten in order

to see if he has celiacs or if something else in the gut is causing his

microscopic fecal fat numbers to be so high. They also told me that celiacs is

different than gluten sensitivity. She said celiacs almost always shows up in

the blood and that gluten sensitivity does not show up in the blood. They do

not hold by the Enterolab tests. However, the fecal fat test is a

universally accepted test, and we are proceeding on that. They also told me

that the

only way to determine gluten sensitivity is to go off gluten and see if it

improves symptoms.

 

If I were you, I would submit the Enterolab report to your son's preschool.

Just make a xerox copy, and tell them that he is gluten sensitive and must

adhere to a strict gluten free diet which is stated in the report.

 

My husband will go along with the GF diet once a diagnosis is confirmed by a

pediatric gastro. Although Fasani's office said they don't diagnose at all

for gluten sensitivity just for celiacs which is a lot worse....

 

Shoshannah