Enterolab clarifications

[Guest guest]

Dear Shoshannah,

 

I've been exactly where you are! And, as Medical Research Mom, I think

I can help give you more information:

 

First, Enterolab didn't diagnose you as having celiac disease. This

must be diagnosed with a biopsy, and refers only to the destruction or

damage of villi in the small intestine, due to gluten intolerance.

 

You and your son are producing antibodies to gluten, which means you

are gluten intolerant. The classic manifestation of gluten intolerance

is celiac disease. However, medical professionals are beginning to see

that gluten intolerance shows up with many symptoms.

 

There are some mainstream MDs who accept Enterolab tests as valid.

There is one GI in Atlanta, who sees people aged 14 and up, who uses

their testing. Most don't. And it can take up to a year to see results

from a GF diet.

 

My daughter had an antibody level of about 140 from E'lab, but had

negative bloodwork and biopsy through the children's hospital.

 

However, here's an abstract of a fairly recently published study on the

efficacy of stool and salivary testing for gliadin antibodies:

 

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?

cmd=Retrieve & db=pubmed & dopt=Abstract & list_uids=15481630 & query_hl=2

 

Here's another link about non-celiac effects of gluten intolerance:

 

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?

cmd=Retrieve & db=pubmed & dopt=Abstract & list_uids=15965221 & query_hl=4

 

And a recommend to all: PubMed is one of the best resources in my life.

It's run by the US government, and has abstracts from medical papers

published in all peer-reviewd journals, sometimes even before

publication. It's great to print something and bring it in to one's

doctor, as added evidence as needed. Doctors respect this kind of

information. Here's their main page:

 

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=PubMed

 

Tree

 

 

> I feel kind of desperate right now. I just got my lab test and my

> son's lab

> tests back from Enterolab in Dallas, Texas. They analyzed both our

> stool

> samples and told us that we both have celiacs. I am not worried

> about myself

> because my symptoms have already been alleviated by following a

> gluten free

> diet. My husband will not accept that my son has celiacs until it is

> confirmed

> by a pediatrician or a pediatric gastroenterologist. He will not go

> along

> with my son following a gluten free diet and it won't work unless my

> husband

> cooperates. Although he will go along with it once the diagnosis is

> confirmed.

>

> What I need to know from you all or from anyone is this. Is Enterolab

> or

> " the stool specimen test " valid. They look for the antibodies in the

> stools.

> My son's antigliadin antibody in the stool was 18 and normal is under

> 10. My

> son's Fecal Antitissue Transglutaminase IgA was 18 Units, and

> normal range

> is under 10. My son's Microscopic Fecal Fat Score was 829 Units and

> normal range is under 300.

>

> Does anyone know anything about these numbers regarding fecal tests.

> Will

> another doctor use these numbers and do further investigation. Or

> will they

> tell me that it is not mainstream medicine. My husband spoke with my

> uncle,

> who is a doctor, tonight. My uncle said it sounds like alternative

> medicine

> and may not mean anything. Is testing the stools for celiacs

> considered

> alternative medicine.