update

[Guest guest]

Hi all.

 

I just thought I would up date you on my husband since I was sharing

with you. He has had two blood test done now, and both have come back

positive for celiac. He will be having his biopsy done December 2nd.

We also found through the internet that the blisters on his feet and

red rash on his feet and the other skin problems on his body are

actually HD, and that people with HD all have Celiac. We have been

going to the Drs for the last 5 years for help with this problem none of

them knew what it was. Now after researching it , we know. They say

that Celiac is a secondary condition and that HD is primary and that is

why my husband has not had any weight loss like our son did. Where with

our son Celiac was primary and he never had HD. It is all very

intersting. My husband is very glum and not happy at all. We figure

that the HD/Celiac started about 5 years ago when He hurt his back. He

has had cronic pain every since, off and on and has been miserable.

They say that a shock to the system can trigger HD/Celiac. We figure

that is what happened. That is when all his skin conditions started as

well. They say it takes men and average of 5 years to get diagnosed.

I guess we fit that mold. Now we have two Celiacs and we know that my

daughter is a carrier. I have talked with my husbands parents and his

sister. They are all upset because they know they are all carriers too

and could possibly get it. My sister in law has been very ill since

having her daughter 2 years ago and has always had a wheat allergy which

she has chosen to ignore. She is not thin and does not have any skin

conditions, so she may not have triggered it, but I talked to her about

how important it is for her and her daughter to get regular testing, so

that if the Celiac does get triggered they will find out right away and

not after they have been sick for a while. We will be talking to my

husbands brother over next weekend about it. I get tested every year

when they draw my blood when I go in for my yearly gyn exam. I figure

they are already drawing my blood, I might as well do the Celiac test.

I could also be a carrier as I have Irish/Scottish/German blood lines.

So I would rather be safe then sorry about it. Sorry to ramble on so.

Thanks for listening.

 

Amy L