Guest guest Posted November 16, 2004 Report Share Posted November 16, 2004 LaDonna, I did that wrong it is really DH.. or Dermatitis Herpetiformis , which is a horrible skin condition that is caused by Celiac. Here is a website that has some great information about it http://www.dermatitisherpetiformis.org.uk/ IT is such a relief to know that going gluten free my husband will be able to get rid of this. They say it will take anywhere from 6-12 months. But I am going to go see our naturapathic Dr. to get Mark started on some supplements that will heal his gut faster. I will also be using Aloe juice that I get from Walmart which is a natural anti-inflamitory for the stomach and intestines to help with this healing process in hopes of getting rid of this condition faster. I am so happy to finally have some answers. I am hoping to have my husband back soon. The last 5 years have been really hard as Mark has become increasingly tired, sleeps all the time. Irritble and never feels good. It has been going down hill and in the last 6 months his health has bottomed out fast. I took him to the ND and she did some food allergy testing, I think I shared this before, but he came back allergic to 90% of the foods she tested for. She told him this could not be accurate, that there must be something else going on. On this test he tested postitive for wheat, rye, oats and barley, so I thought WOW I bet he has Celiac but it took me 4 months to get him into his dr. to follow up on it. Now that we know his skin condition is DH, and it will clear up as well, we are so happy! My husband has been so embarrassed by it, and will not wear shorts or t-shirts, and it has been hard to get him to go swimming, which he loves to do. I am hoping for a very different summer in '05 now. LaDonna, how is your husband doing? It has been 4 years since he was diagnosed? I would love to hear. Does anyone else on our list have DH? I would love to hear what your expereinces have been and if it has cleared up for you going GF. Thanks Amy Tea Cozy wrote: > > > >>>>We also found through the internet that the blisters on his feet > and > red rash on his feet and the other skin problems on his body are > actually HD, and that people with HD all have Celiac. > > Amy, I enjoyed hearing from you again and appreciated the > information you shared. I'm sorry that your husband is going through > this. He is fortunate to have you in the family --- as you are > already a good gluten-free cook! I am not able to " pull up " into my > memory " what " HD is. What do those initials stand for? > > Thanks, > LaDonna > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2004 Report Share Posted November 16, 2004 Doctors, Right! I used to suffer from DH and it's awful. I was misdiagnosed with Herpes three times in spite of the fact that all cultures came back inconclusive (and the drugs didn't do anything). I was also hit with diagnosis for depression and acid reflux (so many drugs and no relief). All the symptoms of CD with DH were present but it took seven years for my diagnosis. So I feel his pain. An important bit of information for you regarding DH which you may or may not have come across. The symptoms can be cleared up with Dapsone(a drug). I am not sure of the dose but supposedly it can resolve the pain quickly and the rash soon after. I don't have personal experience of the effect. Unfortunately, by the time I found out this information I had been on the diet for months and my symptoms had resolved on their own. CD is a heavy diagnosis to wrap your head around but at least the knowledge gives us the power to heal ourselves. Good luck to both of you. Tom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2004 Report Share Posted November 16, 2004 Actually, DH is considered " celiac of the skin " . Many never have positive biopsies. However, the only cure is a gluten free diet (dapsone for life can relieve some symptoms, but other damage is caused by the immune reaction to gluten in the body). Don't be upset if it takes 2 years to get rid of DH symptoms -- they are quite stubbborn and the nerve damage that causes them can take awhile to fully heal (and he'll get flareups any time he eats gluten). Also, try to avoid iodine rich meals until he is healed, as that will also cause flare-ups. And your sister-in-law's " wheat allergy " is more than likely celiac, which has entered a more critical phase since childbirth (common in celiac, especially those who won't follow the diet). again, the only cure is a total gf diet (not just avoiding when possible or convenient). > > Amy Lovelace > > I did that wrong it is really DH.. or Dermatitis Herpetiformis , which > is a horrible skin condition that is caused by Celiac. --- [This E-mail scanned for viruses by Declude Virus] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2004 Report Share Posted November 16, 2004 Tom, Thank you so much for replying. My husband has had acid reflux and depression as well. So you adding that information is a great help. We talked about Dapsone, but my husband is really against taking more meds. So I am going to go see our ND to talk about how to quickly heal his leaky gut and get him on the road to health faster. Again, Thank you for responding! Amy Thomas Hall wrote: > > Doctors, Right! > > I used to suffer from DH and it's awful. I was > misdiagnosed with Herpes three times in spite of the > fact that all cultures came back inconclusive (and the > drugs didn't do anything). I was also hit with > diagnosis for depression and acid reflux (so many > drugs and no relief). All the symptoms of CD with DH > were present but it took seven years for my diagnosis. > So I feel his pain. > > An important bit of information for you regarding DH > which you may or may not have come across. The > symptoms can be cleared up with Dapsone(a drug). I am > not sure of the dose but supposedly it can resolve the > pain quickly and the rash soon after. I don't have > personal experience of the effect. Unfortunately, by > the time I found out this information I had been on > the diet for months and my symptoms had resolved on > their own. > > CD is a heavy diagnosis to wrap your head around but > at least the knowledge gives us the power to heal > ourselves. > > Good luck to both of you. > > Tom > > > > > > Check out these affiliated vegan lists ~ > > http://www.Christian-Vegan-Cooking > http://www.VintageVeganTea > http://www.VeganMenus4HealthyLiving > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2004 Report Share Posted November 16, 2004 Thank you for the information. I was reading on the DH website and it did say that if you had DH you had celiac. Both blood test came back postitive now, so we really do not need the biopsy any more. But I think we are doing it anyways. The GI already told us that we may not get a good sample, but because of the blood work we did not need one. Thanks for the heads up on the iodine rich meals. I thought iodine was in salt, where else would we get a meal that would have a high iodine count? I think my sister-in-law has celiac also, I have talked to her about at least getting the blood work done. She is thinking about it. I spoke with my brother-in-law today and he says he has similar things to my husband but would not go into detail. We are staying with them next week, so maybe he will share some more. I will feel bad if both my husbands siblings have Celiac, but yet thank goodness to know and get treatment and be able to live a long healthy life. That is what we all want, right? Thanks for shareing Amy K. Oland wrote: > Actually, DH is considered " celiac of the skin " . Many never have positive > biopsies. However, the only cure is a gluten free diet (dapsone for > life can > relieve some symptoms, but other damage is caused by the immune > reaction to > gluten in the body). Don't be upset if it takes 2 years to get rid of DH > symptoms -- they are quite stubbborn and the nerve damage that causes them > can take awhile to fully heal (and he'll get flareups any time he eats > gluten). Also, try to avoid iodine rich meals until he is healed, as that > will also cause flare-ups. > > And your sister-in-law's " wheat allergy " is more than likely celiac, which > has entered a more critical phase since childbirth (common in celiac, > especially those who won't follow the diet). again, the only cure is a > total > gf diet (not just avoiding when possible or convenient). > > > > > > Amy Lovelace > > > > I did that wrong it is really DH.. or Dermatitis Herpetiformis , which > > is a horrible skin condition that is caused by Celiac. > > --- > [This E-mail scanned for viruses by Declude Virus] > > > > Check out these affiliated vegan lists ~ > > http://www.Christian-Vegan-Cooking > http://www.VintageVeganTea > http://www.VeganMenus4HealthyLiving > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2004 Report Share Posted November 18, 2004 Fish is one source of a high iodine meal. Instead of iodized (or sea) salt, look at kosher salt - most is very low in iodine. And processed foods are high in salt and may contain high amounts of iodine. Just make sure to keep iodized salt around for those that are not avoiding due to DH (or thyroid issues), as it is an essential mineral/element of the human diet. Karen > > Amy Lovelace > > Thanks for the heads up on the iodine rich meals. I thought iodine was > in salt, where else would we get a meal that would have a high > iodine count? --- [This E-mail scanned for viruses by Declude Virus] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2004 Report Share Posted November 18, 2004 Karen- Thank you for the information. My husband is already on a low sodium diet due to high blood pressure. But has been lax for a few days and his DH on his feet broke out so bad. He had been really good for about 2 two weeks and his feet seemed to calm down for a while, the blew it the last 3 days and is complaining about how bad his feet are and the pain is bad too. So this make perfect since. Thanks for the heads up. Amy K. Oland wrote: > Fish is one source of a high iodine meal. Instead of iodized (or sea) > salt, > look at kosher salt - most is very low in iodine. And processed foods are > high in salt and may contain high amounts of iodine. Just make sure > to keep > iodized salt around for those that are not avoiding due to DH (or thyroid > issues), as it is an essential mineral/element of the human diet. > > Karen > > > > > Amy Lovelace > > > > Thanks for the heads up on the iodine rich meals. I thought iodine was > > in salt, where else would we get a meal that would have a high > > iodine count? > > --- > [This E-mail scanned for viruses by Declude Virus] > > > > Check out these affiliated vegan lists ~ > > http://www.Christian-Vegan-Cooking > http://www.VintageVeganTea > http://www.VeganMenus4HealthyLiving > > > Quote Link to comment Share on other sites More sharing options...
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